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"cure" my ass
I'd say change that to treatment rather than cure.
And add the fact that it's nearly impossible to get regularly due to what is now obviously intentional shortages and the strict controls combined with PBMs restricting the ability to shop around for places with it in stock. So you can't set up a regular reminder to take it or even actually take it regularly even with a reminder.
Pfft you think that's bad, what about having to remember to contact your doctor for refills?
Every fucking month.
Now I've got a kid who is on stimulants too. Bad enough I gotta remember to call my doc, now I have to remember to call his, too.
And worse, I'm on Vyvanse 40mg and he's on Adderall ER 10mg. These are both blue-and-white capsules. I freak out every time I give him meds that I'm accidentally giving him mine.
He has one left. I need to call his doctor. But instead I'm thinking of making a meme about it.
But if either (or god forbid, both) of us go unmedicated, we set each other completely off. We are so alike it's uncanny, and I have no idea how to deal with myself from the outside. I was handled with verbal abuse so I learned to internalize everything. That's something I try very, very hard to not pass down.
Update: I called the doctor, they are submitting a refill. Thanks op for reminding me, kinda.
God damnit I need to message my doctor. I've been trying to remember for like a week.
Edit: thank you for the reminder, now maybe I won't run out of meds. Maybe.
ADHD: When you use social media as a scheduler
And gosh forbid they are "out", cause you can only check 3 days before you run out. Nothing like being treated like a criminal because of a medical condition.
Nothing like being treated like a criminal because of a medical condition.
I swear to god. This is the part that makes me really angry. Sorry I can't help my invisible medical condition.
Oh I know. Especially with Vyvanse. It's better now but between the generic shortage and then the precursor "shortage", it was bumpy.
If it helps: I asked my pharmacy and they now send me a text asking if I would like to refill the prescription explicitly shortly before it's out, so the scheduling is (mostly) no longer my problem. Might be worth seeing if they can do that for you. Good luck!
That's what my pharmacy does. They're a locally-owned joint, too, which is really nice.
Oh! And the pill is highly controlled and has constant shortages, so it takes quite a bit of effort to get refills.
Oh, you can only get it two days before it runs out?
Have fun scheduling vacations around pill shortages!
Sometimes I can’t even get it then. The pharmacy has some how gotten dates wrong due to how the doctor sent in the prescription so when I refill it, I have to wait color then to confirm I can get it
Oh, and once a year the insurance requires me to call them to tell them I need to keep taking the meds I have taken for over a decade because the other options don't work. This isn't very consistently timed diring the year and I only find out when trying to fill a prescription and there is an 'error'
And some of them i hear you have to take in the morning, but very specifically after eating breakfast. Like we're some miracle being that eats every meal
It would be my kind of humor, if half the effect was actually just getting folks to regularly eat breakfast.
I use a pretty decent app, MyTherapy, that has gentle reminders after the first one. I use it like snooze. I take my meds exactly around the scheduled time
"Cure" yes, famously cures require you to pay for upkeep of them every day for the rest of your life. Like a subscription to being normal that you're required to pay in order to hold down a job. On top of the other subscriptions you have to pay to live and work.
Oh and it deadens your emotions, messes up your sex drive, makes you emotionally volatile as it wears off everyday, and makes you an insomniac.
"Cured!"
You are not cured if you have to regularly take medicine. The pills are a treatment.
We are not sick, we have mind that evolved for purposes that are a lot less useful in the present. Meds allow us to tone down our tendencies, to be able to cope better in current societies.
If your meds are zombifying you, dosage or medication are not right. Ideally I'd shoot for baseline plus a small amount of ADD
They didn't say zombifying. All the side effects they listed can still occur when you have found the effective dosage.
Also, "sick" when it comes to mental health is pretty much always measured against the cultural norm. That is why nuerodivergent is a better word. Cause it is divergent from the current norm. Even if that norm isn't actually the average.
And after the effects of the previous pill has expired, usually!
Tbh that’s one of the most consistent frustrations - that fucking rollercoaster every damn day. And I try to time things so my long-acting stretches into the evening, so I can have some productive time for myself instead of just my job getting it, but that’s actually harder than it sounds. And also I try not to give myself horrible insomnia, because popping even a short-acting too late in the day just makes me wired.
But I’m completely insensitive to coffee in terms of wakefulness, so idk maybe I just need to pound more coffee and give myself arrhythmia or something?
Hard same. I want my meds to make me happy, not give all my good hours to a job. But if you miss time it, or even your fucking body decides to be super susceptible to the meds that day, you are up all night
Yep. We need some like insulin pump type shit
So I know Concerta is a much more controlled dosing, and apparently Vyvanse is engineered to be similar.
But instead I have to take one extended release Adderall in the morning and remember to take an immediate release in the afternoon.
I like your suggestion of an an insulin like pump. It would probably have to be hardware programmed with no external way to interface with it to prevent people from hacking it and dumping the whole dose in their body.
It would probably have to be hardware programmed with no external way to interface with it to prevent people from hacking it and dumping the whole dose in their body.
Good news, actual insulin pumps are already a proprietary nightmare! 🤗
Jokes aside, this sort of thinking about folks with ADHD is super harmful. Neurotypical people would love to do that, but folks with ADHD just want their brain to work normally. There's nothing stopping us from taking all our short-acting meds at once either, apart from the fact it would fluffing suck!
I am very aware of that. I design systems in the environment they intend to live in.
As much as I don't like it, we live in a world controlled by nuerotypicals and I don't see that changing anytime soon.
Should that environment change then I can design for that environment. Otherwise I end up with a product that is useful but not usable.
You find it hard to remember things and focus on doing things? You should do meth about it.
Oh, and a consistent exercise routine helps a ton too. And so does keeping a consistent sleep schedule. And so does minimizing stress. And minimizing shame regarding your symptoms.
I got a pillbox with an alarm on it which yells at me until I take my meds. Works pretty well!
Yes. This is the way. Never trust your own willpower when you can use a (hopefully simple) device to put yourself into a routine!
I saw another post recently about advice for living with ADHD and a lot of people said “habit formation is impossible.” I didn’t have time to reply at the time and subsequently forgot about it until now. My number one hack for getting around the habit formation problem is setting reminders on my phone! I use them for everything and it always feels satisfying to complete a task and check off the box to finish the reminder!
Ah shit, I forgot to take my medication.
That sounds more like a treatment than a cure.
Or three times a day if you are on instant release, which works better for me. I have 3 alarms set on my phone, and I still forget often.
Well, that reminded me for today.
If you can manage that, you're cured.
😭😭😭
I’ve had ADHD my whole life and have become pretty good at raw-dogging it. Never been on meds for it.
My brother has it too. When we were younger he got medication. I didn’t - because he was more “HD” and I was more “AD,” - so his symptoms were evident whereas mine weren’t- he was a loudmouth idiot and I was an introverted daydreamer. Parents just thought I was “lazy.”
Now I’m middle-aged, have a son who has ADHD, and he’s medicated. I’m still not. At this point, what’s even the point?
What's the point ?
How about improving your life, like a lot.
I was diagnosed with Bipolar 2 in my early 50's.
When I got the medication dialed in, I was like "Fuck! People live like this their whole lives!?"
It was like I had been living inside a tumble dryer, and now I was looking in from the outside.
I recently had ADD added to the mix. We are still working on the meds and dosage, but having experienced the life changing power of a dialed in med, I'm beyond expectant and hopeful.
Just my two cents. I was diagnosed at 9, and on medication for a few years (some kind of patch on my arm). I then was off meds from like 13 to 27. I got back on meds last year, and it has been life-changing, quite literally.
Sure, I was "functional" without them. I could hold down a job, have good relationships, remember to exercise, whatever.
But everything is so, so much easier with medication than without. I'm on a low dose of Adderall and fluoxetine (for gad), nothing crazy. Social interaction is much better than before, and I'm much happier, and massively more productive.