Asklemmy

I've never had any support from others into managing my adhd so I can't say what helps for sure, but I can shed some light into it so you can try to find a way to help.

. 1. It's very hard for us to associate work and reward unless the reward is immediate. If you tell your kid "if you clean your room we can do X this weekend", they'll want to clean their room, but their "body" will still see it as a pointless chore.

. 2. "out of sight, out of mind". Imagine that people's brains are like an internet browser, with different stuff being in different tabs. For a NT person, there are a few tabs open with the stuff that they are doing that day and anything that is not relevant at the moment is saved on bookmarks to be retrieved at another time. The active tab is the thoughts that are currently going on in the head. For someone with ADHD, this browser would not have bookmarks and in turn it keeps the tabs open forever. As an effect of that, we can no longer manually switch between tabs. Once we switch to a different tab, the old one is lost and the only way to access it again is "clicking on a link to the same page". But we are so used to switching tabs all the time that everything loads instantly already.

Let me try to give practical examples of what I mean with this:

Say you live on the second floor of a building and you need to take the stairs to get home. Going up you notice the first step of the stairs is broken and need repairs. You make a note of it and continues going up. Thats a thought for the "stairs" tab that is currently active. You go into your house and notice your pet's food bowl. The browser now switches to the "feed pet" tab, which makes you realize you haven't done it that day yet. Anything about the stairs is now completely wiped from your head, as if you had never even thought about it. You go feed your pet and on the way you notice a pile of dirty clothes to wash. Your brain now switches to laundry tab and you forget anything about the pet. You start the laundry and go back to your living room, see the pet's food bowl again and goes "oh yeah I need to feed it" - this puts the pet tab back into your head. This time you carry the bowl with you so it keeps that tab active and you can complete the task. At night you're watching some show, commercial break hits and an ad shows someone going up some stairs so you go "fuck, the stairs" but it's night now and you can't do anything about it. Your wife comes in and asks what are you watching. You have no idea because you're on the "stairs" tab now. Commercial break ends, you see one character and that puts you back on the show tab, so you instantly remember the name and the whole plot.

If you expect someone with ADHD to do something, there's only a few ways they'll actually do it:

• there's immediate consequences for doing/not doing it.
• there's something constantly reminding them they need to do it.
• they dedicate their whole day into not forgetting to do it.

That third one is what we've come to call "waiting mode". It's what we do when we have an appointment at a specific time of the day for example. We hold on to that "tab" so hard to ensure we don't lose it, that we basically become unable to do anything else until that is done. When we're in waiting mode, simply looking at a clock will switch the active tab back to that appointment and make us lose track of whatever else we were trying to do. Everybody eventually develops this skill (sacrificing their whole day so they don't forget their appointment) after missing too many things - so don't expect your kid to be able to remember to do things on their own.

. 3. Living like this is tiring. Feeling like we have no control over where our own thoughts go. It's like there are bees inside our head constantly buzzing buzzing. And then at one point you find something that makes the bees sleep. Playing videogames, drawing, solving some logic puzzles - what it is changes for everyone, but your kid will find hobbies that will make the buzzing stop. Such a hobby will give great relief, on top of anything else a hobby gives us. But when the bees are sleeping, we are "frozen" into that tab - if left to our own devices we'll often forget to eat, sleep and everything else. Initially you'll have to ensure your kid doesn't get stuck on their hobby alone. Do remember though that everytime you take your kid off of their hobby, you're waking up the bees in their head. You may notice that their immediate reaction to it might be to be very annoyed. You'll both have to learn to manage it, but what I recommend is trying to keep interruptions to a minimum. If the kid needs to do things, try to get them to do them all at once so they can have more ininterrupted time too. If you wake the bees every 10 minutes, it can be infuriating.

. 4. Any relief that we get from doing rewarding things or from "putting the bees to sleep" are also contained to that "tab". If your kid spends a whole afternoon resting they'll feel rested during that afternoon, but as soon as you ask them to do some chore, it's as if they hadn't rested at all. Imagine like you had a clone of yourself and you have your clone do everything you don't like doing. It's kinda like that, but instead of being two different beings, your kid is switching between being the one that only rests and the one that only works. Doing the same chores every day feels more and more annoying every time we do it.

. 5. Kinda repeating one of my previous posts, but anything that is stashed away somewhere will eventually be forgotten. Things that are kept in plain sight will naturally see more use. Things may end up being suddenly forgotten too. For example if the kid is learning to play guitar and they practice every day for months, then one day they don't and it goes on for six weeks before they even remember they were learning the guitar, at which point the habit is completely broken. Habits in general are harder to form and once formed, we still need to put effort into keeping it or it may just vanish.

I could still write a lot more, but I should get going now, writing this made the bees sleep and I forgot to go to work.

It's very different for everybody, but here are things that would apply to SOME:

• She might reject "must do now" orders. Instead of saying "Start your homework now and do it until it is finished", change both the start and duration to something manageable. "Hey, you are home! Just relax for 20 minutes, and 5 minutes before dinner starts, get everything for your homework ready on your desk." Starting the actual homework is far less overwhelming, then. And instead of "... until it's done", make a deal like: "You only have to do 12 minutes of the task, but with a challenge: 12 minutes of maximum efficiency and performance!". When it is about cleaning the room, also provide a clear unit of work, such as a time constraint (with stopwatch, never wing it!), or toys only, dirty laundry only, a well-defined section only.
• She might already be the willpower equivalent of a body builder, because she has to do with force of will what other people have done for them, be it the frontal lobe breaking down a task, or handing out dopamine rewards that she does not get. When she starts a task such as homework, she has to face the whole tree of little steps and what could go wrong: Find the backpack, alternative plan for when the math book is not in it, the notebook has half a page left, so she will have to stop in the middle to find the new one (where is it?), ...
• When she is on a productive obsession, such as reading, an instrument, an area of knowledge, let it run its course undisturbed. There might be phases in which everything feels like too much, so these phases are invaluable. Much of her skillset might come from intense obsessions rather than continuous habits.
• Focus on finding a starting point to an overwhelming task, such as point 1: Get the homework ready and in place, then do something else. It might trigger a thing where she WANTS to start immediately, and otherwise, the start will be so much easier.
• Allow her to skip homework when it is too much and write a note for the teacher. E. g. got back home sick, doctor visit on the afternoon, exhausted and unable to finish homework, but did a start. When necessary.

What are things people have said or done for you that helped you feel seen and loved?

So I can't give much on the coping mechanisms - she'll have to figure her own flavor of ADHD and coping mechanisms out, likely by trial and error.

But things that make me feel seen and loved / things that made me feel small and worthless, I can talk about.

My parents actually knew I had ADHD - turns out I got diagnosed as a kid and they did fuck all about it and never mentioned it - and figured the best thing for me was "tough love". I was routinely punished for things they made very clear to me as an adult that they knew were symptoms, and I was acutely aware of just how inconvenient and difficult I was for everyone else in my life. They figured if they let me "deal with the consequences of my own actions", I'd "learn", but all that did was make me feel miserable, worthless, alone, and anxious.

My husband couldn't be more different about it. ADHD is insanely frustrating - for no one more acutely than the sufferer. You spend most of your life actively fighting yourself about everything from brushing your teeth to doing your own hobbies. He is incredible about not making it about him, and making it really, REALLY clear that he doesn't love me less because of the ADHD and he couldn't possibly love me more without it. He helps me constantly and without fanfare - I joke he can read my mind because often by the time I get "now where did I put my--" out of my mouth he is placing my missing phone/keys/headphones/water bottle into my hand (it turns out phones don't go on top of the laundry hamper and your wife in the other room will likely want that soon).

While it is clear that my ADHD is our common enemy, it isn't because he feels like it picks fights with him - it is because he chooses to fight it alongside me because it makes me miserable and therefore has chosen violence. He is willing to sit quietly next to me when I need a little more structure, brain storm strategies and priorities for busy weekends, listen to me talk about things he doesn't understand while I sort out my thoughts, never makes me the butt of jokes, and has some incredible problem solving skills when all I remember is that I put something "away" and it isn't actually "AWAY-away" (recent example - I lost my headphones for days, and I could remember I had been sitting at my desk, specifically rolled them up, and put them "away" in that desk, but they weren't there. Or in any other drawer, or under the desk, or my nightstand drawer, or my backpack, or any pockets, or purse -- he walked to my desk, turned 180 degrees and a few feet back to the infrequently used sewing table behind me, opened the "equivalent" drawer, and behold!! Headphones. "I knew it!! It's the same wood as your desk!!" Besides my ADHD apparently, who thinks like that??).

Some of this is implicit, a lot of it is explicit - he reminds me frequently that he's not upset with me, asks how he can help, and jumps in immediately. For me, the most important part of all of it is his attitude - he doesn't make a big deal out of it, he stays positive, he's reassuring, he's involved, and he's never resentful. For me, we are confident that short of some medical breakthrough I will never really be as functional or happy independently as I can be with someone else providing external support, structure, and executive function, but he's verbally and cheerfully told me he's ready to be my Tactical Support Husband for the rest of my life.

I make his favorite desserts a lot.

The hardest years are still ahead of you. I have ADHD and was undiagnosed until junior year of high school. I was doing amazing in school until things started getting hard enough that I couldn't just rely on my current knowledge and had to actually study. Make sure she develops strong study/organizational habits now before she gets into high school, because that's when things can really start to fall apart. It sounds like you are already doing a great job, and more than my parents did at that age, so you might have far less of an issue.

Kids with ADHD often have days and weeks and months and years in which almost every interaction with a parent or teacher is mostly negative. It doesn't take long for this conditioning to make kids feel bad about themselves--e.g., see themselves as stupid and lazy--and feel bad about the parents and teachers. They often become secretive or otherwise avoid the people they've had thousands of bad experiences with.

If there's any way to shift that balance, it will be powerful for your daughter and for your relationship with her later. Sometimes this means just letting go of certain things. Sometimes it means letting her get away with stuff. If she has siblings, it probably means looking like you're treating your kids unfairly. Sometimes it might mean reaching out with love and kindness when there seems to be no chance that will be received well. You can potentially be one of the best things in her life, but the path of least resistance--and the path that "normal" parenting leads to--is a world where you are an agent of unpleasantness or punishment for her more often than of happiness and comfort.

As she grows up she will learn lots of things adults need to know; some quickly, some very slowly. She'll need help at a lot of points, and if you can be a person she asks for help, her life will be better. When she's 20 or 30 she'll be independent and living a life, no matter what your parenting style was. At that point, the relationship she has with you depends a lot on her accumulated memory and gut-level conditioning from years of being around you.

I'm choking up as I write this because I have a daughter and I know I'm not a perfect dad. I want very much to have a good relationship with her as she grows up, and I know I don't always make that easy. It's a huge challenge. I say this because what I wrote sounds really preachy; I'm preaching to myself as much as to anyone else.

Ah shit. I need to learn this.

The worst thing for me when I got diagnosed was the realisation of how much of me is just ADHD/ASD. I'm very high masking according to my doctor, and now I understand why I often feel completely drained of energy. It's pretty mad...

If you feel like you have ADHD, getting diagnosed is absolutely worth it. Even though it will probably wreck your perception of yourself, everything will probably make sense in hindsight. It's very strange yet liberating.

I'll begin to get a conversation going

Note: ADHD is very real and very hard on people who have it.

I know two people with diagnosed ADHD, and as with many disorders, it is common that people expect others without it to be completely lacking, or, this case, have only mild experiences of a similar kind.

Regular people absolutely get most of the common experiences of an ADHD individual: they can quickly get overwhelmed, struggle with motivation to do some basic everyday things and then get hyperfocused on something and forget the rest completely, can have impulses they don't control. They, too, manage to develop a lot of tricks for maintaining motivation and going through the everyday issues.

What matters for diagnosis is the severity of these events and how often they occur. With ADHD, all those events happen so often that it gets impossible or strikingly hard to pursue what you need without using techniques/medication to manage your behavior.

This is why many regular people may not understand or not accept ADHD as something valid and why it may not help to list to them the kind of limitations you have - they have all the same experiences, it's just that they are less common and severe, and so they manage to force through them while you may get overwhelmed.

A more helpful approach could probably be to come from the fact it's a real diagnosis, and outlining just what it means exactly to have ADHD, to talk about the severity of the episodes and how they are not only experienced by you personally, but also described in the medical literature. This still probably won't change the mind of some bigots, but it might help other people to understand it better.

Hope there is some insight in here.