I don't really know how I handle it. I'm bedridden, leaving it only for my number two. I guess my wife and kids telling me that they love me keeps me going. And sometimes there are funny videos on YouTube.
Today's my birthday and one if my friends donating to https://mecfs-research.org/ for me brought me to tears. So I guess I still have hope.
Now, I can't give you actual advice, if this is something that's constantly bothering you, you might want to speak to a therapist. What I can offer is my perspective - however, you might want to know beforehand that I'm not chronically ill. I had medical issues which weighed on me quite a bit, but those turned out to be resolvable after about 2 years.
I don't think live has any grand purpose and you'll never be content if you try to chase one either. There is no point in waiting for something that may never come. The best thing you can do is to find things you enjoy and maximize whatever you can get out of live. Try lots of different things within your means, visit places and meet new people. The worst thing you can do, from personal experience, is to repeat the same things every day. Your days blur together and there is no meaning to be found in them.
That sounds like good advice
I'd say people run around their whole life chasing peace. Having the time to 'just wait' is the contrast to the 'stress' people experience in heir daily lives. A guy I know recently said 'Work gives us purpose', since you're retired you have served yours and can now peacefully enjoy your free time. I'm not I'll, but I sleep a lot too. Sleep is by far my favorite thing.
If your body is failing there's plenty for your mind to do. Mental exercise burns almost equal amounts of calories compared to physical. Learn something new, do puzzles, do inverse Laplace Transformations, do the taxes, do whatever is mentally stimulating. If you read a lot, and dream a lot, then maybe you should start writing.
There's a difference between being a burden and accepting help. Helping each other is what makes us human. Arguably the first sign of human society was a prehistoric humanoid skeleton with a healed broken leg. If you feel like a burden, try to to quantify why? Are you asking for to much assistance? Are you asking too often for it? You can set clear boundaries with your family on how much assistance you feel comfortable accepting, and how much you actually need.
The end game? You've already reached it, now you can do what ever you want and are capable of. Nobody expects you to work in your condition. The young and healthy work so that the ill can deal with their struggles. That's what the whole 'No man left behind' attitude is all about.
https://www.mayoclinic.org/diseases-conditions/chronic-fatigue-syndrome/symptoms-causes/syc-20360490 ?
Don’t let it get to you! You are probably awesome. Hopefully you will get better!
Also you should know that there are other diseases that can cause similar symptoms. I have mixed connective tissue disease. It causes me to have tremors, sleep constantly, and my biceps and calves hurt intensely after a little effort. It's debilitating. It took me a year to get diagnosed.
I'm not convinced that I don't have a connective tissue disorder. It sounds so much exactly like what I deal with, but I have been told that I don't have one. I've been told "maybe ME/CFS", but that doesn't explain all of my symptoms, particularly the most debilitating--the muscle fatigue and pain.
A community for chronically ill people.