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submitted 19 hours ago* (last edited 19 hours ago) by Melatonin@lemmy.dbzer0.com to c/chronicillness@lemmy.world

I wake up, I eat, I read a little, I go back to sleep. I wake up, I eat, I read a little, watch a show with my wife, go back to sleep. I try not to eat more than 1500 calories because my activity level is so low I'll get fat if I go above that.

What's the end game here?

EDIT, FOR CLARITY:

I can't work. I need to sleep like 14 hours a day. I'm exhausted all the time. I get fatigued after about 5 to 10 minutes worth of any labor, including things like going upstairs or loading a dishwasher. My hands shake all the time, to where I can almost not clip my own fingernails anymore.

I work a job for years and retired from it there's plenty of money coming in. I just find myself in a place now where this chronic, undefined illness has taken over my life.

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[-] sturlabragason@lemmy.world 4 points 18 hours ago* (last edited 18 hours ago)
[-] ShunkW@lemmy.world 7 points 18 hours ago

Also you should know that there are other diseases that can cause similar symptoms. I have mixed connective tissue disease. It causes me to have tremors, sleep constantly, and my biceps and calves hurt intensely after a little effort. It's debilitating. It took me a year to get diagnosed.

[-] Drusas@fedia.io 1 points 16 hours ago

I'm not convinced that I don't have a connective tissue disorder. It sounds so much exactly like what I deal with, but I have been told that I don't have one. I've been told "maybe ME/CFS", but that doesn't explain all of my symptoms, particularly the most debilitating--the muscle fatigue and pain.

this post was submitted on 30 Sep 2024
41 points (97.7% liked)

Chronic Illness

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