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this post was submitted on 07 Oct 2023
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the_dunk_tank
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I think spoonie culture is a little cringe but wtf are you doing appropriating the language of chronic illness to describe your entitled colonizer mindset? Fuck off.
It's literally not even like the context you use that shit in, you have like too few spoons to be able to wash up after dinner or shit like that, if you are spending spoons on literally just passive sympathy for a political struggle then you're operating in a new dimension of cutlery theory.
I’m crying
I once had a Zionist on
start using leftist terms and tell me I had no right to criticize anything Isntreal did from the imperial core.
Lol what, it's a military outpost of the imperial core and I'm a core dweller, I am well within my rights to criticize the horror I am forced to help subsidize.
Seems like it was along the same vein as their PR push as Zionist vegans that are very progressive and cool and need to be protected from the Islamic hordes.
Why?
I feel like when the idea was first introduced it was a helpful metaphor, but now it’s a weird token of victimhood? As a person active in the CI community when I meet someone who self identifies as a spoonie I roll my eyes and prepare to be exhausted.
Hmm... ok. See the last paragraph of this post for why I have a general distrust of people saying this.
Ok, what I’m talking about is people who engage in illness Olympics and endless one-upsmanship because their symptoms are their identity. I am allowed to be exhausted by people who belittle my experience as a chronically ill person with a multidimensional life.
Can you explain how your experience is belittled? I don't understand that.
Person first language examples and why to use them
I understand that not everyone practices person first language, but I personally find it to be preferable to making my illness equivalent to my personhood.
Ah, ok. Well I personally consider my autism central to who I am as a person, and wrapped up in every aspect of who I am. Its why I dont want a cure, because it would make me a fundamentally different person. A cure would be murder. So I don't like detaching autism from myself like that. But I see what you mean, I at least understand where you're coming from now.
I guess for me I see a difference between someone who "identifies as as spoonie" (which seems silly) and someone who uses spoon theory to describe their situation (which I think any disabled person can do).
I can see where each of you is coming from. I suppose the lesson is that the person ought to be the one deciding how much their identity is bound up with their condition? For example, many people develop mental illness later in life, so it feels more like an acute affliction rather than something they were born with.
To be clear I wasn't calling autism a mental illness, although reading back it's a little confusing due to the wording. The dialogue above was between one person who is autistic and another person who has a mental illness, both which I categorized as conditions (I suppose if we're splitting hairs maybe this word could be problematic, but I think you get my point) which one may identify with to a greater or lesser extent ("being" versus "having").
In the above discussion it is apparent that there is no universally correct attitude to have for everyone, i.e. it's not correct to assume that every autistic person wants to identify with their autism the way @autismdragon@hexbear.net does, so my point was to give space for that person to decide, rather than for others to decide for them whether they "are" autistic or they "have" autism. Otherwise you run the risk of either belittling the person by identifying them with their condition when they feel separate from it, or belittling their experience by implying the real person is being suppressed by a condition which that person in fact strongly identifies with.
I don’t have a mental illness, I have a physical illness that causes me a lot of pain. I think the confusion here is partly my fault for not saying so at the outset.
I clearly have weird hang ups about it all. I can’t pretend I’m “right” to cringe at spoonies but they do make me uncomfy for the reasons I tried to outlined.
Yeah I have to agree with your takes here. I also don't get the point of the spoon metaphor period because you could just express it as like, batteries or change or something instead of introducing a random other item which has no bearing on energy or task completion.
When your illness starts being more performance than illness it’s time to take a step back and ask if you’re performing for yourself or for someone else. And why.
I just want to jump back in and clear up something: I am not talking about autism. I don’t honestly feel that the term spoonie as it originally was developed applies to people with autism/autistics, I always understood it to be a measure of physical illness. (If you want to use it for your neurodiversity you are welcome to do so, but then you’re not who I’m talking about when I talk about spoonies.)
I am in constant physical pain. There is no social model for my disability. I am in agony.
Also yes 100% to your second paragraph, exactly that.
Weird wefwef error
You were rude to assume that I am making any statements about neurodivergency at all.
Spoonie was originally a term to describe physical illness.
I am in constant physical pain.
That is not the same as being autistic. There is no social model for my disability. I am in agony.
I am enraged that you make false statements about my illness.
Yeah, I've heard it used only by my partner who has CFS, didn't know it was used as a neurodivergent thing too now.
Yeah that comment had a rancid vibe
You are mistaken about the origin of the term. Vigilantes are gross, but malingerers also do real, tangible harm to people who have to contend with the medical system and the term “spoonie” is certainly overused by a certain kind of bad faith actor in the CI community.
iirc the "spoons" thing started with (or was popularized by?) a youtube video about mental health, which used an analogy where you start the day with a set number of spoons, and the spoons represent how much mental energy you have to accomplish tasks. During the day, you spend your spoons in various situations, potentially running out of spoons if you overexert yourself. Conditions like depression are said to reduce the number of spoons you start the day with. The analogy helps some people to not beat themselves up for struggling to get through the day.
I just read up on it and its fine if it helps people, but why spoons? It seems to be that anyone so dense they can't grasp that day to day activities tax your limited reserves probably wouldn't grasp your weird spoon analogy. Why not use fuel or batteries or money or something else that people would understand as a limited resource necessary for operation?
because the person who thought of it was eating lunch with a friend. They just used what they had on hand to make the point. I think its part of the reason why people use the term. Its cute. It could be more descriptive. But, when talking about sensitive subjects people like a bit of levity. The spoons add that.
I read the story and I can see how it can help people conceptualize their struggles. I guess i just question the utility. If someone doesn't understand that the pain you feel or lack of energy or whatever often leaves you unable to do everything you want to do, they don't lack comprehension they lack empathy. The spoons thing seems more like its performative theatre for people who already get it. Which is fine, of course, it just sets my teeth on edge a bit for reasons I can't really explain. Thank you for clarifying though
Yeah of course. I think it gives you gsa queer or flag wearing queer at pride energy. Like people are going to think its too much. Or too unserious to respect.
Of course, I dont think that but its understandable that it would bring that up.
Cause putting it in videogame terms isn't gonna work on normal people. If some one put a hand to their head and said OOM. Us internet poisoned people would get it but we aren't the target audience
I have no idea
I think its like "Spoon fulls" maybe?
This sounds likes something from the 1850s. I feel like using a battery analogy would be more intuitive in the modern day. To me anyway, feeling uncharged throughout the day makes more sense than "running out of spoons"