this post was submitted on 30 Sep 2025
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for healthy people to share their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

  6. Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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I'm so bored of just watching shows, but I'm kind of out of ideas of what else to do when I'm tired (usually about half the day, sometimes al day). I don't even have any one super debilitating disease, but I have like a dozen small things going on that kind of rule everything out.

Hand-to-elbow tendonitis keeps me from what I used to enjoy that doesn't require a lot brain power (drawing, gaming and sewing). I know tendonitis is supposed to resolve more or less on its own, but it's been five years and I have no reason to believe it'll go away at this point.

Socializing drains me, I have to do it in small doses.

I used to run, but I have arthritis iny knees now. I swim for exercise, but that's not relaxing at all, because the pool is sensorily overstimulating. I'm actually only supposed to do low intensity exercising for cardiovascular reasons. But I put up with it because of how much it benefits my mental health.

I also have endocrine orbitopathy, and reading often makes me too aware of the pain in my eyes. I tried audiobooks, but I have ADHD and can't keep attention at all when I'm just listening to something.

I love to hike, but I'm kinda scared to get back into it because I need to be close to a bathroom, and that's kinda putting me off.

So, what do you do to unwind? For fun? Not even necessarily looking for advice, I'd just love a chat with people who have similar struggles.

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[–] ryannathans@aussie.zone 2 points 1 month ago

There's worse places to be when you need to shit, bring some TP and enjoy nature