this post was submitted on 04 Oct 2026
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for healthy people to share their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

  6. Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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[–] BoxOfFeet@lemmy.world 7 points 6 days ago (1 children)

100%. I have had Crohn's since I was 15. I had ten inches of my small I testine removed at 16. Managed to hold it in check with double the normal dosage of Humira until I was 36, after years and years of trying different pills. The, the Humira stopped working. Basically, every moment of every day was some level of pain. Ranging from being punched up to being stabbed.

Then, I started Skyrizi. And for the first time in my life since high school, I had no pain at all. It was damn near miraculous. I have severe Crohn's affecting both large and small intestine. And the last round of scans I had showed no active bowel disease anywhere. It astounded me every single day for a long time. I was suddenly a regular person. Pooping once a day and everything. I really don't think i could survive going back. Not mentally. Now that I know what being normal is like.

[–] Zarobi@aussie.zone 1 points 6 days ago

I just have fibromyalgia and chronic migraines and dislocations from hEDS. At some point my sense of pain just broke and now I don't really feel anything anymore. Which is both a blessing and a curse

[–] southsamurai@sh.itjust.works 2 points 6 days ago

You mean it actually filters without conscious effort for people?