disabled

Okay so the pelvic floor is something to protect. I just did some kegels after like a year of last doing some. I used to hate doing it because I was told by a physical therapist to do it as a workout.

Now I'm doing it for fun because I don't think of it as a workout. I think of it as a nice stretch(with no insertion get your mind out the gutter, i really mean just plain kegels) of the muscles. The kind of stretching you do with your back and sides and legs and arms. It's cathartic stretching. I greatly encourage it.

my partner thinks I may be getting more deaf than before. She's a pretty quiet person but almost everything shes said lately I say "what?" or reply with something that had nothing to do with what she actually said. I dont like making ppl repeat themselves more than once but when I still dont fully hear it the second time I try to respond and I'm finding I'm really wrong and answering in a complete non sequitur

The price of my meds went up again. They can't keep doing this. I don't care if you made the packaging a little nicer. I am being gentrified out of my medication.

Is there a Matrix room for disabled/ND users? If not, I would like to help create one.

I'm quitting my job, and on the one hand, I cannot wait to never have to work in a bar again. I was way overworked, literally running an entire bar by myself, and people are so unbelievably rude. I get treated like a vending machine in there, where the worst kind of alcoholics just come in and shout the name of the beer they want while I'm clearly busy. Also the sexual harassment.

On the other hand, I dread the job search. Begging asshole petit bourgeoisie to exploit me is a humiliation ritual.

I'm so exhausted by how difficult it is to get medical care in the UK. One recurring issue is the fact that my prescriptions are always wrong, missing items, wrong doses, etc. I spend my entire life dealing with this nonsense, always having to go back and try to get their mistakes fixed. It got so bad I contacted my local MP and asked him to intervene. I don't know whether he did or not but last week I got a letter from the surgery asking me to come in to discuss my prescriptions. After going down there and dealing with their disorganisation and nonsense multiple times I finally managed to get an appointment to discuss this with an actual GP this afternoon. I am going to ask him to put all of my meds in the correct quantities on the screen, delete the ones I don't use any more and from now on prescribe me three months worth so i don't have to deal with this every month. Whether he will or not, who knows. They never seem to think it's a big deal causing a sick disabled person extra stress and messing up my lifesaving meds every month.

Also I tried to get a physiotherapy appointment as my general injuries like inflamed tendon and plantar fasciitis have flared up again and my knee is getting painful too. I'm on the "open appointment" list, meaning I'm a regular patient there so i'm supposed to be able to phone up and get an appointment whenever my issues flare up, instead of being on the waiting list for ages like people with new problems are. In spite of this the soonest they can see me is Feb 12th! I guess I can just be half-lame for the next two months.

So exhausted. The way medical care is run in this country makes my medical issues, stress and general problems worse than they are already instead of helping. Everything is always an uphill battle. Same as dealing with benefit/financial problems. I am sick and supposed to be resting but I constantly have to fight and struggle for every little thing like food and meds. Why don't they just legalise £uth@n@s1@ instead of killing us slowly?

https://matrix.to/#/#Hexbear_Disabled_and_ND:matrix.org

I made this Matrix room as a private space to chat for the Hexbear disabled/ND community! Like this megathread, it's for people who identify as disabled (including neurodivergent) only.

I made it invite-only with knock to join enabled, but it seems "knocking" doesn't really work, so please DM me with your Matrix username if you want to be added. I also added it to my Unofficial Hexbear Matrix Space which collects Hexbear-related rooms (that one is open, just click on the link to join).