disabled
Welcome to c/disabled, an anticapitalist community for disabled people/people with disability(s).
What is disability justice? Disability justice is a framework of activism which centers disabled people of multiple intersections. Before participating in in this community, please read the Ten Principles of Disability Justice.
Do I count as disabled/a person with disability(s)? "Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Follow the Rules:
- This comm is open to everyone. However, the megathread is only open to people who self-identify as disabled/a person with disability(s). We center the experiences of disabled people here, and if you are abled we ask that you please respect that.
- Follow the principles of disability justice, as outlined in the link above.
- Zero tolerance for ableism. That includes lateral ableism. Ableism will result in a ban.
- No COVID minimization.
- Do not offer unsoliticed health advice. We do not want to hear about the wonders of exercise or meditation, thank you very much. Additionally, do not moralize health or "healthy choices".
- If posting an image, please write an image description for our blind/low vision comrades. (If doing this is inaccessible to you, DM one of the mods and we will help.)
- Please CW and spoiler tag discussions of ableism.
- When it comes to identify-first vs person-first language, respect the language that people choose for themselves. If someone wants to be referred to as a disabled person, respect that. If someone wants to be referred to as a person with a disability, respect that.
- Try to avoid using ableist language. It is always good to be mindful of the way language has been used to oppress and harm people.
- Follow the Hexbear Code of Conduct.
Let's kick back and have fun!
As of December 2025, there is a Matrix Chat Room that adheres to the same rules as the community. If you want to join, it is an invite only server. Just knock to join. Should you have trouble with the link, you can contact the mods for help: https://matrix.to/#/#Hexbear_Disabled_and_ND:matrix.org
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I'm so exhausted by how difficult it is to get medical care in the UK. One recurring issue is the fact that my prescriptions are always wrong, missing items, wrong doses, etc. I spend my entire life dealing with this nonsense, always having to go back and try to get their mistakes fixed. It got so bad I contacted my local MP and asked him to intervene. I don't know whether he did or not but last week I got a letter from the surgery asking me to come in to discuss my prescriptions. After going down there and dealing with their disorganisation and nonsense multiple times I finally managed to get an appointment to discuss this with an actual GP this afternoon. I am going to ask him to put all of my meds in the correct quantities on the screen, delete the ones I don't use any more and from now on prescribe me three months worth so i don't have to deal with this every month. Whether he will or not, who knows. They never seem to think it's a big deal causing a sick disabled person extra stress and messing up my lifesaving meds every month.
Also I tried to get a physiotherapy appointment as my general injuries like inflamed tendon and plantar fasciitis have flared up again and my knee is getting painful too. I'm on the "open appointment" list, meaning I'm a regular patient there so i'm supposed to be able to phone up and get an appointment whenever my issues flare up, instead of being on the waiting list for ages like people with new problems are. In spite of this the soonest they can see me is Feb 12th! I guess I can just be half-lame for the next two months.
So exhausted. The way medical care is run in this country makes my medical issues, stress and general problems worse than they are already instead of helping. Everything is always an uphill battle. Same as dealing with benefit/financial problems. I am sick and supposed to be resting but I constantly have to fight and struggle for every little thing like food and meds. Why don't they just legalise £uth@n@s1@ instead of killing us slowly?
Proud of you for trying to get that stuff fixed despite the literal headaches it causes, hopefully it proves effective and helps a little with getting your meds corrected. Two months to wait for what's becoming a routine phsyio appointment is absurd.
Thanks. I just got back from my appointment. The doctor said he will correct the dosages, he deleted the items I no longer require, and he put it on a 6 month thing (can't remember the name) where every two months for the next 6 months I can get the pharmacy to redo my prescriptions without needing to get a script from the doctor, so at least it cuts out the middleman temporarily. I guess I'll have to see how easy the pharmacy makes it, they're not too good in there.
Waiting times are ridiculous. Normally if you have a new injury it's about a 4 month wait to be seen. But being on the regular list and being able to come back any time, I should be seen within about a week usually. But the NHS is just falling apart, everything takes so long and is so difficult. I'll try and see if I can go back to the podiatrist, it might be quicker and they deal with tendon issues too.