310
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
this post was submitted on 09 Oct 2023
310 points (78.9% liked)
Autism
6555 readers
333 users here now
A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.
We have created our own instance! Visit Autism Place the following community for more info.
Community:
Values
- Acceptance
- Openness
- Understanding
- Equality
- Reciprocity
- Mutuality
- Love
Rules
- No abusive, derogatory, or offensive post/comments e.g: racism, sexism, religious hatred, homophobia, gatekeeping, trolling.
- Posts must be related to autism, off-topic discussions happen in the matrix chat.
- Your posts must include a text body. It doesn't have to be long, it just needs to be descriptive.
- Do not request donations.
- Be respectful in discussions.
- Do not post misinformation.
- Mark NSFW content accordingly.
- Do not promote Autism Speaks.
- General Lemmy World rules.
Encouraged
- Open acceptance of all autism levels as a respectable neurotype.
- Funny memes.
- Respectful venting.
- Describe posts of pictures/memes using text in the body for our visually impaired users.
- Welcoming and accepting attitudes.
- Questions regarding autism.
- Questions on confusing situations.
- Seeking and sharing support.
- Engagement in our community's values.
- Expressing a difference of opinion without directly insulting another user.
- Please report questionable posts and let the mods deal with it. Chat Room
- We have a chat room! Want to engage in dialogue? Come join us at the community's Matrix Chat.
.
Helpful Resources
- Are you seeking education, support groups, and more? Take a look at our list of helpful resources.
founded 2 years ago
MODERATORS
Autism Speaks played a huuuge part in making that the dominant narrative about autism for the past 20 years or so.
In the 00s (maybe early 10s?) one of the videos they made for parents of newly diagnosed children had a parent talking about how she was considering driving off a bridge to kill herself and her autistic child, but didn't because her non-autistic child was also in the car. This was presented as totally normal and just a way to prepare for how an autistic child will ruin your life.
Autism Speaks is disgusting. What an awful organization. I wish more people knew that.
I didn't know until I saw it getting trashed on the autism subreddit and asked why... So keep getting the word out!
I will. I don't have ASD but several of my loved ones do and I'm glad Autism Speaks hasn't gotten to them and made them ashamed of who they are.
I had no idea that existed. Wtf
But, there must be ways to manage the ill effects of Autism. Parents can talk to experts, instead dealing with it on their own.
I get what you’re saying, and caretakers certainly deserve support, even (especially!) when they’re talking about wanting to kill their own child, even if for no other reason than the child’s safety.
IMO Autism Speaks’ biggest issue is that their money comes from marketing autism as a horrible disease that affects only or primarily children, which only increases stigma against autistic people of all ages. They also have the problem of having no autistic members involved in a meaningful capacity in the organization, and AFAIK the only autistic member of their board of directors left because they were essentially ignored. That absolutely flies in the face of decades of disability advocacy, where a common refrain is “nothing about us without us.”
TL;DR: caretakers deserve support but Autism Speaks is super awful.
Malicious misinformation is nothing new I guess.
very sane behaviour regarding your child.
When that kind of parents how their autistic child is very difficult and that it keeps getting worse I am always feeling like : Karen, only 10 % of your kid issues are caused by his autism, the 90% are 100% because you treat him like shit and he is turbo-traumatized