disabled
Welcome to c/disabled, an anticapitalist community for disabled people/people with disability(s).
What is disability justice? Disability justice is a framework of activism which centers disabled people of multiple intersections. Before participating in in this community, please read the Ten Principles of Disability Justice.
Do I count as disabled/a person with disability(s)? "Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Follow the Rules:
- This comm is open to everyone. However, the megathread is only open to people who self-identify as disabled/a person with disability(s). We center the experiences of disabled people here, and if you are abled we ask that you please respect that.
- Follow the principles of disability justice, as outlined in the link above.
- Zero tolerance for ableism. That includes lateral ableism. Ableism will result in a ban.
- No COVID minimization.
- Do not offer unsoliticed health advice. We do not want to hear about the wonders of exercise or meditation, thank you very much. Additionally, do not moralize health or "healthy choices".
- If posting an image, please write an image description for our blind/low vision comrades. (If doing this is inaccessible to you, DM one of the mods and we will help.)
- Please CW and spoiler tag discussions of ableism.
- When it comes to identify-first vs person-first language, respect the language that people choose for themselves. If someone wants to be referred to as a disabled person, respect that. If someone wants to be referred to as a person with a disability, respect that.
- Try to avoid using ableist language. It is always good to be mindful of the way language has been used to oppress and harm people.
- Follow the Hexbear Code of Conduct.
Let's kick back and have fun!
As of December 2025, there is a Matrix Chat Room that adheres to the same rules as the community. If you want to join, it is an invite only server. Just knock to join. Should you have trouble with the link, you can contact the mods for help: https://matrix.to/#/#Hexbear_Disabled_and_ND:matrix.org
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After asking the GP to refer me for ages and then being on the waiting list for ages, I finally got to see the neurologist today. Not the headache neurologist I usually see but a different one, about all my weird neurological symptoms, the tingling, numbness and pins and needles in my legs, feet and face and the numbness and weakness in my hands and arms. He said I have carpal tunnel syndrome in my arms. So that is a lovely new issue to contend with. He said he doesn't think there is anything wrong with my legs (other than the usual issues from the stroke) and he thinks the feelings in my legs are something that happens when people have other medical conditions - in my case the stroke and migraines - that cause your brain to stop blocking out sensations it normally blocks out. Now I'm feeling things that are always going on but that most people just don't feel.
So OK news about the legs but I'm worried about the carpal tunnel progressing and causing further disability.
While not the best news, at least you got a potential answer from this one instead of being ignored and fobbed off on another doctor. Did they recommend anything to help relieve the carpal tunnel symptoms?
They said if it gets worse I could have steroid injections or surgery.
Hopefully that won't be needed for a while