this post was submitted on 14 Jul 2025
40 points (100.0% liked)
disabled
237 readers
6 users here now
Welcome to c/disabled, an anticapitalist community for disabled people/people with disability(s).
What is disability justice? Disability justice is a framework of activism which centers disabled people of multiple intersections. Before participating in in this community, please read the Ten Principles of Disability Justice.
Do I count as disabled/a person with disability(s)? "Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Follow the Rules:
- This comm is open to everyone. However, the megathread is only open to people who self-identify as disabled/a person with disability(s). We center the experiences of disabled people here, and if you are abled we ask that you please respect that.
- Follow the principles of disability justice, as outlined in the link above.
- Zero tolerance for ableism. That includes lateral ableism. Ableism will result in a ban.
- No COVID minimization.
- Do not offer unsoliticed health advice. We do not want to hear about the wonders of exercise or meditation, thank you very much. Additionally, do not moralize health or "healthy choices".
- If posting an image, please write an image description for our blind/low vision comrades. (If doing this is inaccessible to you, DM one of the mods and we will help.)
- Please CW and spoiler tag discussions of ableism.
- When it comes to identify-first vs person-first language, respect the language that people choose for themselves. If someone wants to be referred to as a disabled person, respect that. If someone wants to be referred to as a person with a disability, respect that.
- Try to avoid using ableist language. It is always good to be mindful of the way language has been used to oppress and harm people.
- Follow the Hexbear Code of Conduct.
Let's kick back and have fun!
founded 9 months ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
I'm so exhausted because of my thyroxine issues right now. It's making it hard to get on and deal with my benefit appeal and the dignitas stuff, but I'm managing to do at least a little something towards them each day like send an email or fill out a form. other than that I am so tired I keep falling asleep during the day. I'm still trying to get the money together to pay for the doctor's note but apparently the only GP that knows me personally there is on holiday for 2 weeks so I guess there's no point rushing right now anyway. I feel like if I do at least one thing towards these two issues each day then at least some progress will get made, however slowly. And i'm going to need to pay for ID documents but have no money for that either. It's all so overwhelming the only thing I can do is one small thing each day.
For once though, one tiny good thing happened. Recently the neurologist said she wasn't going to prescribe my migraine tablet, rimegapant, any more because my migraine diary shows it isn't working well enough to justify the expense. (Apparently a pack of 8 tablets costs the NHS £125 and I've been getting 2 packs a month. The pharmacist scolded me a few months ago for costing the NHS so much money.) She prescribed a new tablet in it's place, but that was only delivered today so i haven't tried it yet. I've been very, very worried about managing without the rimegapant. Last week I quickly put in a repeat prescription request for my two boxes of rimegapant, hoping I'd be able to get it dispensed before the neurologist's letter arrives telling them not to dispense it any more. Today I received it, and when I opened the prescription bag, not only did it contain rimegapant but weirdly it contained 7 boxes instead of 2. A three and a half month supply instead of a 1 month supply. I can only assume the pharmacist made a mistake but I am keeping them. A small victory at last.
Damn comrade that sounds so exhausting. And to think that the NHS was world renowned at one point lol. Well I guess us Americans will have a new horrific round of medical austerity to put up with soon
My understanding is Americans have been lobbying British politicians to gradually chip away at and dismantle the NHS. They want us to have private healthcare so they can sell healthcare to us. Those of us who rely on the NHS are just collateral damage for America to make bank.
Oh wow I didn't know that. I was actually referring to the new Medicaid cuts coming soon!
Punch the pharmacist square in the mouth. What the hell. I would have flipped my lid had that happened in m general vicinity. The police would have had to drag me away i would have screamed that much in their face.
That is a small step from calling you a useless eater to your face.
I already know 99% of the British population considers me a useless eater. Why they won't just put me out of my misery I do not know.
That is good you got extra meds! Are the new ones she prescribed very similar or no? Using cost as a justification for that is so stupidly evil.
And honestly, doing just one little thing a day is more than enough. Hopefully those little things will build up and you'll be able to see something come from it without having to sacrifice too much. You deserve lots of rest and I hope you can find some relief soon. Has the tingling subsided at all?
The new ones are a preventative and not used to get rid of a migraine when it happens. I don't think I'm going to try them as they have a lot of side effects and I can't use the rimegapant with them (they aren't safe to mix apparently), I'll have no acute treatment for when a migraine happens. The tingling comes and goes. Right now I'm just mostly exhausted from the lowered thyroid dose. I'm struggling to stay awake or do anything.