this post was submitted on 16 Jun 2025
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Are you diabetic? What about any vitamin deficiencies?
No, I'm not diabetic. I get tested quite regularly when I got to the endo for my thyroid issues. And I have been diagnosed with multiple vitamin deficiencies and prescribed supplements previously. But since I started getting help on mutual aid I'm not starving any more so the root cause of the deficiencies should theoretically be gone.
It depends on what you're eating. The menthol tingle could be a b12 or b5 deficiency and even if you're not starving the exact diet could be an issue, or your medication could cause malabsorption (I don't know your medical regimen). plus if you already have had vitamin deficiencies it probably takes more to get things back in balance and keep it there. Although you'd have other symptoms too. If it's not a diabetes or a vitamin deficiency I would have said it sounds vascular, especially if you have limited mobility, but the face is throwing me there. Eh, I'm not a doctor and I probably can't help. But most of the things that cause those kinds of symptoms are manageable, and you've already shown you can handle a lot of stuff. It's not for me to tell you how to feel about stuff, but I think when you're feeling things like how a dog would be put down in your place, it's worth bearing in mind just how much you can and have handled.
I get B12 shots, but the B5 could be something to look into, they never tested me for that. Malabsorption could definitely contribute, and I have a very restricted diet due to the fact my cancer treatment has caused me to develop many food intolerances.
As far as being able to handle stuff, it just keeps getting worse. Within just the last few months my already terrible migraines have turned into hemiplegic migraines (which are like having a stroke, one side of my body stops working and feeling), and my mobility situation has gotten so much worse I am basically housebound apart from being driven to the shop and going in for a few minutes (and with todays foot surgery I'll even lose that for a while). I've been having issues with my thyroid meds again lately too. Whenever I think to myself "OK, life is bad but I can tolerate this," the universe says "OH REALLY?" and makes it even worse.
And that's just the health, never even mind the financial issues that come with being disabled. Even on top of debt, a benefit appeal, now it's even getting more and more difficult to get an adequate response to my mutual aid posts. I'm totally out of sainsburys vouchers and it's gotten to the stage I have to make multiple posts to get a response. I don't know how I can handle any more but still shit just keeps coming my way.
B5 deficiency is pretty rare because you get a pretty decent dose from easy sources, and if you've taken like any kind of vitamin b complex that has b5 in it you should be good on that. But you have faced starvation per your own testimony and that's when any kind of vitamin deficiency can start to become a factor. But I'm not a doctor yet and I'm just hoping it's something like that because it's treatable.
But even if life is being shit, you're at least surviving. You're planning for future stuff you want to do, you've got things that are at least a little cool. I'm sorry it took me a bit to respond to you, but I don't really know how to put stuff like that into words.
I woke up today and found a bald spot right at the front of my hairline. So I guess my hair is falling out too now. It's been receeding at the front for a while but this is the first actual bald spot. Now I don't know whether this is the cancer treatment, nutritional deficiency or something else.
Every day there is something new and wonderful to wake up to!
hey, some people really rock the bald look. Stanley Tucci, Terry Crews, Mark Strong, Samuel L. Jackson
And at least you're not bored
I look hideous enough already, bald will be the icing on the cake.
Yes and no, it depends on how long they lasted beforehand and how much & long you're supplementing now (have that issue with iron, I've been taking supplements for a year and the levels are only now starting to go back up).
From how you describe it, I'd guess it might be something that's tied to neurological functions that is not being supplemented enough. I'm no expert tho so please do take this with a grain of salt.
Tbh there are a couple of the supplements I haven't been taking religiously due to the side effects. I hoped eating enough would fix the issues but maybe the damage is too far done already anyway.
I don't think it's done yet. The body can withstand a lot, and finding the right way to supplement the vitamins that are missing will make a difference. The question is really, can you get different types of supplements
On the NHS, unlikely but I could ask.
Give it a try, I'd say