this post was submitted on 29 May 2025
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disabled

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Hello everyone! Don't have a lot to say, finally got around to making the new mega.


As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

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[–] DisabledAceSocialist@hexbear.net 10 points 1 week ago* (last edited 1 week ago) (1 children)

I am so sick of having to deal with prescriptions. This month there were more issues. I got my script and struggled to even find a pharmacy that could fulfil it. It took days to find a pharmacy that had the exact thyroid and cancer meds that I need. And it was a pharmacy further away than usual, my landlady drove me there to get it but it pissed her off that she had to help me with yet another thing. Another bother is that i asked the GP surgery - even wrote them a letter asking - that they put my thyroid and cancer meds on a separate script from the other items. But they ignored this and put all the items together. The pharmacy didn't have the other items in stock. This means we have to go back there another day to collect the other things. Why can't the damn GP surgery just do as I ask for once?

And I'm struggling to stay in laundry disinfectant. Because I'm immunocompromised and riddled with infections, I have to wash my laundry in medical grade disinfectant. My skin infections are so bad and so persistent that I've been hospitalised because of them on multiple occasions and of course had multiple surgeries on my foot infections. The laundry disinfectant helps a lot. But it's not provided on the NHS, that's another thing I have to pay for myself. No money of course. I've made about 3 mutual aid posts and two lemmy posts asking for help with this.

And my period has started just 2 weeks after the last one.

I'm so tired, why does everything always have to be a struggle?

[–] gingerbrat@hexbear.net 5 points 1 week ago (1 children)

First things first: cuddle

Now, as to the rest. I remember that a while ago, I asked my doctor about this prescription stuff too, and they told me it's apparently mandatory to issue as few prescription sheets as possible. Don't know who makes the rules, but it could be a simple case of "Your GP has to follow a stupid rule" and not a "I dislike this patient and am gonna make their life more difficult". At least I hope that's the case here too. If not, fuck the GP.

I sympathize with the irregular period. The stress of the last few days might have something to do with it, so I hope this'll be a one time only event. Feel hugged, love.

I also hope someone comes through with the laundry disinfectant, can't be that you get another infection because of this one thing.

[–] DisabledAceSocialist@hexbear.net 5 points 1 week ago (1 children)

If they have to issue as few prescription sheets as possible, I wish they would just say so instead of just ignoring my request. But it makes it impossible for me to get my prescriptions, for instance one place has the 100mg thyroxine I need. Another place has the 25mg thyroxine. Another place has the 50mg thyroxine. Another place has the other meds. I can't get them all in one place and most of them can't even order the items I need in. So for instance today I took a sheet to the only chemist in town who has a type of thyroxine I need, I got the thyroxine but there were other items on the script they can't get, so I guess I just go without those items now. Surely it's better to issue a few extra sheets rather than let me go without meds. I'm so tired of dealing with it every month. Also my landlady has to drive me from chemist to chemist and complains about it.

I'm writing a letter to the GP to ask for 2 month (or loner) prescriptions instead of one month so i am not constantly dealing with this. I'll see what they say.

Anyway, thanks for listening. cuddle

[–] gingerbrat@hexbear.net 5 points 1 week ago

Always, and good luck, love cuddle