this post was submitted on 24 Jan 2025
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Sorry to hear that. A word of advice - don't let them fob her off by delaying or under-treating any symptoms she has. I had a stroke and first my rehabilitation was delayed because of covid, and then what was meant to be physio every 6 weeks was more like every 6 months because of the NHS backlog and waiting times. I am STILL on the waiting list to see the neurophysios, haven't seen them at all yet. Long story short - I now have permanent damage that might have been avoided. Balance and co ordination problems, weak left side that I can't use properly - this causes issues with walking and other daily activities. Fight for her to make sure she gets what she needs. I don't have anyone to fight for me and it feels like I've been left to rot.
I hope the blairites responsible for your treatment (or lack thereof) burn in whatever hell they believe in. Fortunately, my partner has been treated amazingly so far and it even seems like she’s generated some buzz among the docs because the situation is so rare. She’s recovering super well and saw a physiotherapist today and will see a rehab gymnast (is that the term?) tomorrow.
That's good to hear. I wish her all the best for a speedy recovery.
Oh and would you dm me your money-sendy details? I know you’re struggling and as cliche as it seems, after going through all this I’d like to help out another stroke victim in a way i know matters <3