DisabledAceSocialist

joined 5 months ago
[–] DisabledAceSocialist@lemmygrad.ml 10 points 1 day ago (2 children)

Some of us would welcome a nuke.

 

Thanks so much for the help I've received on here previously, but I need some more help. I am making a post on mutual aid but sometimes I have to make two or three posts there before getting a response, and sometimes don't get a response at all.

For the infection in my surgical wounds I need 10% povidone iodine solution, like this:

https://www.storkz.com/amazonbasics-195515026321.html?currency=GBP&country=GB&gad_source=1

https://www.ebay.co.uk/itm/296729003742?_skw=betadine+10%25&itmmeta=01JMHH7M8A61K6K6D2WPNVXPQS&itmprp=enc%3AAQAKAAAA0FkggFvd1GGDu0w3yXCmi1cTXE%2BmRk4GVgSEculzC58x9cZSuZXq7XI9kq57z5TSmu7WAr2%2F8XQwzy0HRKsG%2BVqsOPCe9nFf%2BtbFDpN7Z8hFArjpQDLvw%2Fpsb6NC9eunqXczS2v03VbExbf2ImMX80tc%2B8l7UXmEwDf33g4nEkoRE4tdwkIiz5K%2Fx3nCpQ0O7H%2FylzExCiUAe2m%2FLyVvJcBCk%2BGUucvrZ1f9jzw8iXz8ISFbhDPnitUvm4o2elEwXbTlnFlu264pcE07k1%2FHbhE%3D|tkp%3ABk9SR6rEnrGkZQ

https://betadine.com/betadine-products/betadine-antiseptic-solution/#%3A%7E%3Atext=%28povidone-iodine%2C+10%25%29&text=Our+trusted+antiseptic+solution+helps%2Ccuts%2C+scrapes%2C+and+burns.

10% ointment like this:

https://www.ebay.co.uk/itm/286121265009?_skw=10%25+povidone+iodine&itmmeta=01JMHQBRZAS54Z1023EWWKXR6B&itmprp=enc%3AAQAKAAAA8FkggFvd1GGDu0w3yXCmi1etS20HUYiC6M823Ih5MmRdEE%2FssHoz5KdbX3zue0z72d4pDCv%2B%2BfO2K5f08iCDrN6QbY5HIYjWbhZl0UnIRvf5DYii0xs6eYCg1jSJDm%2BUXn52DW3McU6kaRz8GZIve9gRxJogDgb2gsBDqpBExI%2Fs37ucmN8N9sCHEZDofhUHnWI1U7jjlPehrIR5yBCdbtl3aGX0ndEgxpCLPM%2BIGQZGWyUFUY0sduAclOW07JkNqauCkIpowhhJZD%2BepIzKggx0cKlwNHInbyHHf1WsknpX5rUpB4xu9vP%2BnCHuz1eCjw%3D%3D%7Ctkp%3ABk9SR-yPr7ekZQ

https://www.salesatdrmyhill.co.uk/betadine---povidone-iodine-ointment-20g-758-p.asp

I need strong, waterproof shoe covers as I can't wear shoes right now but still need to go to medical appointments:

https://www.amazon.co.uk/Pack-pcs-PREMIUM-overshoes-ASPRO/dp/B078YQTM3X?sbo=RZvfv%2F%2FHxDF%2BO5021pAnSA%3D%3D&sp_csd=d2lkZ2V0TmFtZT1zcF9zZWFyY2hfdGhlbWF0aWM

I also need quite a lot of powder-free nitrile gloves, like this:

https://www.mccormicktools.co.uk/products/ph-bodyguards-gl895-blue-nitrile-powder-free-disposable-gloves?variant=41740133138513

https://www.ebay.co.uk/itm/144733163093?_skw=bodyguards+nitrile+1000&itmmeta=01JMHHT6Q4ZNHNBGPTF56MDF5F&itmprp=enc%3AAQAKAAAA8FkggFvd1GGDu0w3yXCmi1cHxNMsQ0GDCRBaAScC%2B9RwFKkiuhIR5nEP8OsNVz%2B%2B7eW94mwsaYpeRQZtLtKgHg7VZA0MLI8iXT0xr7RKWCzhPlar%2F5IzZ4%2BtFShMMdKd1QWIvApjsGUQjDFX9o78JZFVVId9SByqdktT7rYensjNCg8TrqLOIDlVujvus5xAAqql%2BzBktjC1zJSIfKADlLw3hUov0uW5XXOoqq7xnor2NWcIbghck%2Bsr9cQ%2B3yC2lT2jF%2BCUf7SmqRSm0%2BfVPU%2FJB%2F3oQ2NZ9%2FjRyvbJ0%2FJvE%2FjVHvwSiJ%2FkqLo%2BIVefkA%3D%3D|tkp%3ABFBM6OvosaRl&var=443958739103

Would anyone be willing to order these items and send them to me? As mentioned in previous posts, I would prefer not to accept money if at all possible because of the DWP checking claimant's bank accounts, and I can't afford to buy things myself until I get my benefit claim sorted out. I need these items quite urgently. I need as large a quantity as possible, as my surgical wounds keep getting infected and I have another surgery scheduled for 24th April, so I'll be going through all this again, for months.

[–] DisabledAceSocialist@lemmygrad.ml 5 points 3 days ago (1 children)

If they won't write letters for your claim, can't you try telling them something like: Since you won't help me go on disability and I can't afford to survive without a source of income, you are leaving me no choice but to stop taking the medication so I can keep on working?

Oh sorry to hear that. Do you have anyone who can accompany you?

This bit " Are we doing everything to make sure people in the city know how to access this critical care?" particularly pisses me off. He's implying that it's the family's own fault that this happened, that there is all the help needed out there, the family just didn't access it. Never mind that they'd asked the authorities for help twice and didn't receive any.

It reminds me of in the UK whenever a disabled person has their benefits stopped and starves to death, the news reports are always full of victim blaming, saying that there's so much help out there, the disabled person just didn't access it. When, actually I know from experience, there is nowhere enough help and whatever authorities you contact just refer you back and forth to each other.

It seems most countries just have the appearance of help in place so that people who are doing alright can sleep at night, imagining that there is help available for the less fortunate, when there really isn't.

It's absolutely falling apart. Then again, the whole country is.

 

This is mental, and infuriating.

I had a stroke during covid, which has caused problems with walking, balance and co ordination. Even basic things like dressing myself are more difficult now. The rehabilitation and physiotherapy parts of my local hospital were shut down because of covid, so my treatment was delayed.

Eventually, I started physiotherapy but by then the damage had been done. It hasn't helped at all. After a while, the physios realised it wasn't going to help, and said I should have been referred to the neuro physiotherapists all along. So I spent several years getting inadequate treatment (and this inadequate treatment also started late because of covid).

They finally referred me to the neurophysios, and I've been on that waiting list for about a year. Yesterday I got a letter from them. Paraphrasing, but it basically said:

You've been referred to us. If you still want treatment, call this number within 2 weeks or you'll be removed from our list.

The letter was dated 30th December. Now I don't know if they'll make an exception or if it's too late and I have to be put to the back of the waiting list again. This is what it's like for a stroke patient trying to get basic treatment. And the government wonders why so many people are too disabled to work.

😡

[–] DisabledAceSocialist@lemmygrad.ml 10 points 5 days ago (2 children)

Sorry to hear that. I'm in a similar situation. But we are here for you and you can have us as your social outlet. Are you able to walk outside at all?

 

Whenever a state or an individual cited 'insufficient funds' as an excuse for neglecting this important thing or that, it was indicative of the extent to which reality had been distorted by the abstract lens of wealth. During periods of so-called economic depression, for example, societies suffered for want of all manner of essential goods, yet investigation almost invariably disclosed that there were plenty of goods available. Plenty of coal in the ground, corn in the fields, wool on the sheep. What was missing was not materials but an abstract unit of measurement called 'money.' It was akin to a starving woman with a sweet tooth lamenting that she couldn't bake a cake because she didn't have any ounces. She had butter, flour, eggs, milk, and sugar, she just didn't have any ounces, any pinches, any pints. The loony legacy of money was that the arithmetic by which things were measured had become more valuable than the things themselves.

Skinny Legs and All, Tom Robbins

[–] DisabledAceSocialist@lemmygrad.ml 9 points 1 week ago (1 children)

For example he recommended a nausea medication but I looked into it and you shouldn’t take it for more than 5 days because it can cause irreversible motor damage lmao.

This, unfortunately, is what it is to be on meds. You take one for your medical condition, but that one causes side effects, so you take another med to deal with the side effects. Then that med causes side effects, so you take another to deal with those side effects. Before you know it you're on so many meds you need help keeping track of them. It's a ridiculous way to live. And the doctors don't care because it isn't them living like this.

 

Perhaps the revolution is underway!

[–] DisabledAceSocialist@lemmygrad.ml 3 points 1 week ago (1 children)

There are very few professions I have less respect for than the medical profession. It took them three and a half years to diagnose my cancer because they refused to do any tests. They said I was "too young for it to be anything serious." They accused me of being a hypochondriac, suggested I must be depressed, or have chronic fatigue syndrome. Anything other than do their jobs and find out what was wrong. I suffered immensely that entire time, so badly I tried to commit suicide. And then they treated me like an attention seeker. Now they know I'm seriously ill and disabled but still very few of them do what they can to help me keep a roof over my head, or stay fed. Truly awful people.

[–] DisabledAceSocialist@lemmygrad.ml 9 points 1 week ago (3 children)

I'm probably the comrade who advised you that would happen. Yep, this happens to me, every time. Only the GP and mental health practitioners will write sicknotes and letters for benefit claims. None of the others I see - endocrinologist, neurologist, oncologist, stroke clinic, will do it. They all say "That's not our job, we don't do that."

Once, after much pleading, I managed to persuade the physiotherapist to write one for me. But he didn't want to do it, and made sure the note he wrote was useless.

My evil ex-therapist, who I've written about before - wrote me a good letter for my benefit appeal. But then months later when I no longer wanted to attend her sessions she got angry (I'm assuming because she doesn't get paid for the sessions I don't attend) and said she would inform the benefits people that I haven't been going to the sessions (because my attendance at her sessions, plus the letter she wrote, would help me win my appeal). I pointed out that I already have to beg for food while I wait for the outcome of my appeal, and if I lose the appeal altogether, then I'll have no hope. I'll become homeless, and commit suicide. She did not care at all. She said "if that happens, I'll give you a phone number for a homeless shelter."

I'm a partially sighted cancer and stroke patient undergoing months of multiple foot surgeries. It's the middle of a very cold winter and I can't wear shoes. Can you imagine being homeless and probably moved around from shelter to shelter - if they even have any beds available - carrying my belongings from place to place in this condition? She did not care at all. it didn't affect her so she didn't care what happened to me. Just like she didn't care that i can't afford food now, and when I told her about this site and how people donate food vouchers to me, she was appalled and contemptuous about me begging strangers for food and told me to "Stop doing that." OK I'll just starve then.

These medical professionals do not care about us. They only care about their paycheque. It would take them 5 minutes to type and print a quick note about our conditions, and that would make it easier for us to stay fed and housed. But no, they are too mighty and important to concern themselves with the homelessness and starvation of the proles. Most of these specialists earn around £100K, or even more, a year. Live in nice houses, have foreign holidays, send their kids to private school. What do they care if you or I are on the street or in a homeless shelter, hungry and freezing? It doesn't affect them.

 

Just keep blaming the poor people so you’ll forget how fucking awful the elitists of the world are!

 

I guess next she'll be complaining that there are too many of us starving to death on the street.

So just mention a few friends on here and just don't mention they're online.

[–] DisabledAceSocialist@lemmygrad.ml 7 points 1 week ago* (last edited 1 week ago) (4 children)

We can be your online support group. But what proof do you need to give the doctor? Do they need to meet your friends/see photos of you with them? Or is just telling the doctor about them enough?

OK thanks. I'll send it as it is.

 

The amount of bullying I received for being asexual, this does not surprise me.

 

As mentioned on here before, my GP surgery has reduced the amount of meds the prescribe me, not on medical grounds, but I believe on cost-saving grounds. The pharmacist in the pharmacy that is joined on to the doctor's surgery recently complained to me about the cost of my meds, and this isn;'t the first time.

The neurologist prescribed me migraine tablets and says I can take one a day as a preventative, but the doctor will only prescribe 8 a month. This is the med the pharmacist complained about - they're £12 a tablet.

Also they recently cut the amount of eczema cream and soap substitute I'm prescribed in half. Again - no medical reason for this. It's just it costs around £20 a bottle so now I'm only allowed one bottle a month instead of two.

I'm writing to the GP to ask him to reconsider, can someone help me? What should I say and how should I phrase it? Would it be going too far to mention that the pharmacist has (publicly, in front of other patients) shamed me for the amount my meds cost the country? Would it be too emotive to say "I know I'm costing the country money but I need these things"?

 

I've been trying not to ask for help again on here so soon, worried that people will get sick of me. But my surgical wounds are infected and while I have the dressings I need, thanks to help received from here, I now need medical iodine patches. They are sterile patches of gauze that you place directly over the wounds and they fight the infection. They aren't provided on the NHS, I have to pay for them myself. I need them very urgently, less than two weeks ago I ended up in the emergency department because the infection got so bad and I really don't want it to get that bad again.

Due to the DWP checking people's bank accounts, I don't feel safe asking for actual money if I can avoid it (I'm going through a disability benefit appeal.) So I am hoping someone might order these patches and send them to me. I need as many as I can get as they said the wounds from this current surgery could take another 3 months to heal fully, and I'm having another surgery on 24th April. But even one box would be a huge help.

It's really quite urgent.

They are available from various online medical suppliers who take paypal and credit/debit cards:

https://medicaldressings.co.uk/inadine-iodine-dressings/

They are available on amazon:

https://www.amazon.co.uk/Inadine-JKP01481-Non-Adherent-Dressing-Sterile/dp/B075RHBZZ9

I am also getting low on the outer dressings, if anyone can help with this:

https://medicaldressings.co.uk/cosmopor-e-hypoallergenic-sterile-dressing/#f8b3%2Ffullscreen%2Fm=and&q=cosmopor+e

https://www.amazon.co.uk/COSMOPOR-ADHESIVE-7-2X5CM-X-50/dp/B0098LTR06

Due to being unable to wear shoes at the moment but still having to go outside sometimes, I really need some of these. They gave me some at the hospital with my original bandage pack but I'm about to run out:

https://www.amazon.co.uk/dp/B093HR9XK6

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