disabled

Hello fellow members of c/disabled. As already mentioned in a comment thread in this post, the mods created a short "Information Post" about Ableist Language on the site and the consequences of using said language. I would like for you to give us your input and feedback to the document. If you want anything to be included that feels like it's missing, you can send me a DM on hexbear or comment under this comment. I would like to ask you all that the comments in this thread be kept short, as this is the megathread and I don't want to clog it with too many administrative comments if possible. I will make sure to incorporate all feedback and input you have to the best of my ability. You can follow the changes through the document link: https://cryptpad.fr/doc/#/2/doc/edit/ XBOFfyoPSb0-l4vFySADdh+g/

Edit: I will be taking feedback in the next mega as well and post the link to the document again. Thank you again to everyone who already offered up feedback and input, I appreciate you taking the time to help make it better!

"The price of community is inconvenience" people when talking about endless loud music everywhere: 🤗

"The price of community is inconvenience" people when talking about wearing a mask when they leave their home: 🤬

me watching people yell at disabled people for not going to protests:

so youll make them accessible right? youll wear masks right? right??

I got my diagnosis today. Like I always feard, I have endometriosis and according to the images, it's really bad. It's not like I didn't know that already, but having the diagnosis doesn't give me any vindication. The biggest issue is that they told me that I will need to use hormonal therapy if they're going to treat me, which means estrogen blockers or the pill. Having taken both before, I honestly think I'll just stick with living in constant pain. The pain is excruciating and debilitates me for roughly a week each month, but knowing how I react to hormonal supplenents and blockers, I think I'd rather keep eating painkillers.

It just makes me so fucking sad and hopeless. A hysterectomy is off the table as well, as I'm "too young" (sexist bullshit argument) and it apparently has too many side effects (the pill doesn't tho lmao).

What do you MEAN healing isn't linear?

Anyway the season 6 premier of House is about how fucked up psych institutions are, which is funny coming from the show that is overwhelmingly pro-medical abuse. The lesson is "always let doctors do what they want because they're better and smarter than you."

i swear every time i log into this hellhole i get hit with 12d4 psychic damage

can people please stop being complete utter assholes for fuck sake its not that hard

i swear almost all of my migraines these days come from getting too close to cishet men. if they used 1/10th as much body wash as they do body spray my life would be so much better; as it is like 60% of the cis men i encounter reek so heavily of axe or whatever that i can't get within 30 feet of them without it ruining my entire day

this complaint brought to you by this exact situation happening twenty minutes ago

hot take but making fun of fascists (that dont even wear them) for wearing diapers is actually like ableist as fuck

i know its like incomprehensible to some people but there is infact a very large group of people who need continence aids just to exist! lets stop shaming people for daring to have what you consider "unsavory" disabilities

its wild to me that people cant say how terrible someone is without resorting to fatphobia/ableism/other bigotry, and of those people 99.999% of them will be like "no its okay because they suck" when they get called out

I have a volunteer shift AND a work shift AND a meeting tomorrow. lmao I schedule so well, im so good at schedules.

I don't know how to have a conversation that leaves me socially satisfied at the end and I have no idea why or what I can do better

Why would a doctor think negging is an acceptable strategy. I don't care if its the eighteenth time they're here for the same issue.

Rant over. On to the meeting.

Someone got drunk and vomited next to my door, so now I'm going to wash my door/wall at midnight. Fuck my entire life man.

i got approved for one of the disability aid programs in my country it's not the main one, but it's nice to get some assistance finally

I do NOT want to work for someone else anymore. I want to set my own schedule and use my own methods. I'm going to try to make this happen

i forgot how to give pushback to my doctor, i used to be so good at this but i'm so shit at advocating for myself now, he's not taking my disabilities seriously and i have to get him to fill out important paperwork about them soon

I got a letter from the private hospital, it seems they have accepted me for the consultation. So that's something. On the downside my GP surgery recently changed their appointment booking system to an online thing that is so difficult to use I haven't been able to use it. They never answer their phone lines, so it means if I need an appointment I have to actually go there first thing in the morning, get in the queue and hope there are some appointments left by the time I get to the front of the queue, which usually there aren't. Stupid, stupid system.

In fact so many other people are struggling to use this online booking system that the surgery have started running classes in how to use it! Stupidest thing I've ever heard. So many people need these classes that there is a waiting list. I'm on the waiting list and god knows how long it will take. I am honestly starting to think they make it so hard to get an appointment purposely to deter people.

people seem deranged these days. I don't know what happened to make everyond so fucking weird. I am so tired of everything. it feels like america would rather i be dead. I don't want to be dead, but only because i dont want to add to the suffering of people i love. So so tired.

I started using orca, the screen reader, to test how things are for blind people, and I think there are improvements that can be made on hexbear, both on technical level, but also on a user level. Can we try to add an alt to the image in the mega body.

Noting down things:

• On posts, the comment icon/svg says the post id for some reason?
• The context links both say "Show context".
• Profile pictures just say "image".
• The expand post button is just "button".
• The share button (three connected dots) is just "button".
• The moderation history buttons in the more dropdown is under the same , so the screen reader can say there are 4 items, when there is (in practice) 5. But also, the is in it's own so there can be sometimes correctly (but for the wrong reason) 6 items.
• It says the •. But not the pen so it's not clear when a post is edited.
• Thumbnails just say "expand here"

Testing area:

Yeah... it of course says "show"

ⓘ This user is suspected of being a cat. Please report any suspicious behavior

I generally do not think of myself as unique, but there must be some particular way my neurodiversity effects me or something that makes me suffer way more then other people given the same circumstances. I see people, even people in worse circumstances, who are just happier and not as effected as I am and there just has to be something there. Like what about me means I feel this horrible when others don't.

Food bank line is being racist to inuits for being "leeches on society". It isn't exactly irony, but it sure is something.

hate it when people try to perceive something from my statements, like I'd say "it's my birthday" and they'd think I want a gift

For everyone with long covid, please tell the person giving you a vaccine that you have it. If you have insurance, telling them could possibly get you another shot covered later in the year.

Someone who vaxxed me just told me I count as immunocomprimised because I have long covid. They said it means my system is too weak so I need to be vaxxed every 6 months. (6 months is how long my covid vaccine is said to last.)

As a result, my insurance is covering 2 covid vaccines for me this year instead of just one. This is important because a single covid vaccine shot without insurance can cost over $200 in the US.

I have a stim I've done forever, and it is very soothing, but it also keeps me from doing things and is really frustrating sometimes. Like really you'd rather sit here and stim instead of do the fun thing in front of you?? This has been an issue forever too..