this post was submitted on 20 Jul 2025
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[โ€“] Seagoon_@aussie.zone 2 points 6 days ago

Tomorrow is another day

good night everyone, sweet dreams ๐Ÿ˜˜

[โ€“] Bottom_racer@aussie.zone 14 points 1 week ago (7 children)

Heading back down the beach today to tackle the unmentionable plant.

Had a few run ins w/ ol' girl over the last few days so time to give it a rest and let ol' boy decide what's next. Her weight has gone from 53kg -> 42kg over 5 weeks and I just cannot get that to turn around because of refusal. She has it all there, food, supplements, hubby is a doc, someone willing to cook whatever whenever. Makes me feel pretty bad that I just couldn't do it.

So pretty much looking at a PEG (feeding tube into tummy bypassing mouth / throat). Sounds bad but it's not really, the alternative is far worse.

Can't win them all.

[โ€“] Taleya@aussie.zone 10 points 1 week ago

I've been in that situation and sometimes you just go a feeding tube. Because the whole physically eat mechanism is just...rooted. It's not permanent (behold, my fat arse!) but I found during chemo that my whole desire and eating thing was just...no. And forcing it just made me feel sick.

Feels. Dis ain't good. Long distance hugs and give that plant a smacking.

It occurs to me that the ancient ad - Did you have a good weekend? No, forgot the aeroguard - has an entirely new meaning now. This pleases me.

[โ€“] Seagoon_@aussie.zone 8 points 1 week ago (1 children)

oh gees

she must be so weak by now but still stubborn, ( does she even know what she wants and what she's protesting? )

so many hugs

[โ€“] Bottom_racer@aussie.zone 7 points 1 week ago (2 children)

She does, so i cook it, then she can't eat it or if she can she's no where eating near enough of it. I think of something else and she doesn't want it because she didn't ask for it.

I really needed her to not refuse supplements as that's the safety net.

[โ€“] melbaboutown@aussie.zone 6 points 1 week ago (1 children)

Are there any appetite stimulants (ie medication) that might work? Or is it something else?

Iโ€™m sorry you and she are going through this

[โ€“] Bottom_racer@aussie.zone 6 points 1 week ago (1 children)

There are but it's another layer of drugs that I'm not sure she'll be receptive to. I think the main problem is her mouth and pain. She has a bunch of mouth numbing things but... refusal.. grr.

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[โ€“] Seagoon_@aussie.zone 5 points 1 week ago (1 children)

I meant her long term wants or is she just living in the now ? It seems to me she just wants to assert herself , have some way of having say so in her life, and eating and not eating is one way she can do that.

Maybe a way out of that is everyday ask her opinion about other things, that way she might be less defiant about food.

[โ€“] Bottom_racer@aussie.zone 4 points 1 week ago* (last edited 1 week ago) (6 children)

everyday ask her opinion about other things

We do. That's one of the harder things with this non-amnestic MCI. She remembers everything, has her opinions, remembers what's happening currently in the news. There's an aloofness there that is difficult to overcome when in conversation.

The eating issues relate to a series of mouth ops in the past and now poor decision making about what she can (or will) eat. Only thing that slows that MCI business is eating and exercise. It's basically compounding. Other thing with the MCI stuff is stress and anxiety. Ol' boy and I are stressed about not enough food, makes her stressed, makes things worse. If ol' boy and I aren't banging on about food, she eats less which further... It's fucked.

E: In terms of long term when asking her it's day by day.

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[โ€“] Duenan@aussie.zone 7 points 1 week ago

That sounds really tough on you.

I hope things will turn around for you and get better.

[โ€“] Eagle@aussie.zone 7 points 1 week ago (1 children)

Oh that's tough. She won't eat but will consent to a PEG?

[โ€“] Bottom_racer@aussie.zone 9 points 1 week ago (1 children)

This is what really worries me. I suspect she won't. Ol' boys' field so I'm staying out of it. I think that conversation is happening today.

[โ€“] Eagle@aussie.zone 9 points 1 week ago (1 children)

Its a horrible spot to be in. She sounds incredibly strong and complex, and you're all trapped in this cycle of trying to do the best for her.

You've got a great grasp of what's going on with her, and realising when you need to stap back to protect your relationship and yourself.

There's not going to be a single simple answer for her, she is driving the bus while ignoring her long term needs and the people around her trying to provide support and direction. A PEG may just be the answer though. She can get the nutrition she needs to function and heal, without all the other pressures around food intolerances and dietary intake. But they're not great.... they leak, they change what clothing you can wear because the surgeons always put them in the wrong spot on women, they need replacing and there's trauma and pain with that.... its a tough spot to be in. You're doing an incredible job, if no one else is telling you that, we are.

[โ€“] Bottom_racer@aussie.zone 2 points 6 days ago

Sincerely thank you for the kind words and your experiences. They are extremely helpful.

All the hugsโ€ฆ youโ€™re doing an amazing job in a very difficult situation. Hopefully your mum will agree to a PEG or even NG tube, then when she feels better she might be able to eat more readily

[โ€“] PeelerSheila@aussie.zone 3 points 1 week ago

I've got nothing to suggest that hasn't already been suggested by those more knowledgeable and experienced in this thread, but I feel for you mate ๐Ÿซ‚ Hoping things improve for you all.

[โ€“] Gibsonhasafluffybutt@aussie.zone 11 points 1 week ago (1 children)

Goodnight all โค๏ธ

[โ€“] Duenan@aussie.zone 4 points 1 week ago

Night night!

[โ€“] imoldgreeeg@aussie.zone 10 points 1 week ago (2 children)
[โ€“] sandflavoured@aussie.zone 7 points 1 week ago

Sky pretty indeed!

[โ€“] Duenan@aussie.zone 6 points 1 week ago

and sun pretty.

[โ€“] CEOofmyhouse56@aussie.zone 9 points 1 week ago (1 children)

When YL talks about moving out next year there's a little part of me that gets excited inside.

[โ€“] SaneMartigan@aussie.zone 8 points 1 week ago (1 children)
[โ€“] Gibsonhasafluffybutt@aussie.zone 9 points 1 week ago (2 children)

Pretty good day at work. Seems like my weekend actually recharged me.

So rare.

[โ€“] Force_majeure123@aussie.zone 6 points 1 week ago (1 children)

Yay. I feel the same after today's work too - also rare on a Monday ๐Ÿค— maybe in part because im back to a reasonable start time, 830 this week and next. Feels so much better

Fuck yeah man! Here's to a good start to the week :)

[โ€“] Seagoon_@aussie.zone 4 points 1 week ago

yay, good news ๐Ÿ˜Š

[โ€“] Seagoon_@aussie.zone 8 points 1 week ago (2 children)

I ordered a 1.5 kg box of sour feijoa gummies from NZ. They are quite addicting. ๐Ÿคค I will pack them into little bags of 15 count each and keep them upstairs in the pantry so I'll have to really want them. ...lol

I bought a large pack of Haribo lollies. The weird thing is they didn't make me nauseous like others do so I was hoeing them down by the handful. I'm good now for another 6 months I reckon.

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[โ€“] Seagoon_@aussie.zone 8 points 1 week ago

okily dokily

time to make today's to do list

everything on the weekend to do list except buy and play Expedition 33 was โœ… Just too many tasks. I barely watched tv in about a month now ( tho I did listen to an audio book and have been listening to some science type pods )

[โ€“] SpinMeAround@aussie.zone 8 points 1 week ago

Just about counting down the minutes this week. Holidays start as of Friday arvo, so I suspect this week is going to drag even harder than usual.

[โ€“] Seagoon_@aussie.zone 7 points 1 week ago (1 children)

I'm looking at my to do list and I have strong cbf's

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[โ€“] Seagoon_@aussie.zone 6 points 1 week ago (1 children)

I have found my f's, off to do some errands, bbs, luv u all ๐Ÿ˜˜

[โ€“] SpinMeAround@aussie.zone 9 points 1 week ago (1 children)

Can you have a look for mine, please? I think they got left in the weekend.

[โ€“] Duenan@aussie.zone 5 points 1 week ago

Me too please, stuck at work for another hour and my CBF is sitting firmly on me.

[โ€“] bacon@aussie.zone 6 points 1 week ago (11 children)

Beep Beep ๐Ÿšš
๐Ÿ๐ŸŽ๐Ÿ๐ŸŠ๐Ÿ‹๐Ÿˆ๐Ÿซ๐Ÿ“๐Ÿ‡๐Ÿ‰๐ŸŒ๐Ÿ’๐Ÿ‘๐Ÿฅญ๐Ÿ๐Ÿฅฅ๐Ÿฅฆ๐Ÿฅ‘๐Ÿซ›๐Ÿ†๐Ÿ…๐Ÿฅ๐Ÿฅฌ๐Ÿฅ’๐ŸŒฝ๐Ÿฅ•๐Ÿฅ๐Ÿ ๐Ÿซš๐Ÿฅ”๐Ÿง…๐Ÿฅฏ๐Ÿž๐Ÿฅ–๐Ÿฅจ๐Ÿง€๐Ÿง‡๐Ÿฅž๐Ÿงˆ๐Ÿณ๐Ÿฅš๐Ÿฅ“๐Ÿฅฉ๐Ÿ—๐Ÿ–๐Ÿซ“๐Ÿ•๐ŸŸ๐Ÿ”๐ŸŒญ๐Ÿฅ™๐Ÿง†๐ŸŒฎ๐ŸŒฏ๐Ÿฅ—๐Ÿฒ๐Ÿœ๐Ÿ๐Ÿฅ˜๐Ÿ›๐Ÿฃ๐Ÿฑ๐ŸฅŸ๐Ÿฆช๐Ÿฅ๐Ÿ˜๐Ÿš๐Ÿ™๐Ÿ ๐Ÿค๐Ÿชผ๐Ÿฆ€๐Ÿ™ ๐Ÿ—๐Ÿฅฎ๐Ÿข๐Ÿก๐Ÿง๐Ÿฐ๐Ÿง๐Ÿฅง๐Ÿฆ๐Ÿจ๐ŸŽ‚๐Ÿฎ๐Ÿญ๐Ÿฌ๐Ÿซ๐Ÿฅœ๐ŸŒฐ๐Ÿช๐Ÿฟ๐Ÿฏ๐Ÿฅ›โ˜•๏ธ๐Ÿต๐Ÿบ๐Ÿถ๐Ÿฅค๐Ÿง‹๐Ÿงƒ๐Ÿฅ‚๐Ÿท๐Ÿฅƒ๐Ÿธ๐Ÿน๐Ÿง‰๐Ÿ”‹

[โ€“] Duenan@aussie.zone 4 points 1 week ago (1 children)
[โ€“] bacon@aussie.zone 4 points 1 week ago
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[โ€“] melbaboutown@aussie.zone 6 points 1 week ago (1 children)
[โ€“] bacon@aussie.zone 4 points 1 week ago
[โ€“] LowExperience2368@aussie.zone 6 points 1 week ago* (last edited 1 week ago) (3 children)

Uni starts again next week and I am curled up in the fetal position, frantically scrolling through Seek for any job. Ideally, I want to give something in my field of study a go, so I'm looking around at that. But there's the whole grass is greener thing. I shall sit with this uncertainty.

Part of me is considering starting a whole new bachelor degree, which isn't the most viable option right now. It is so tempting though to do a complete 180.

[โ€“] Thornburywitch@aussie.zone 7 points 1 week ago (1 children)

I get that uni is a stressful prospect, but starting is new degree is NOT an efficient stress release mechanism. I'm serious - you need to finish the one you're doing and THEN consider doing another. Waggles finger in rebuke.

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[โ€“] Seagoon_@aussie.zone 5 points 1 week ago (1 children)
[โ€“] bacon@aussie.zone 4 points 1 week ago

โ˜•๏ธโ˜•๏ธโ˜•๏ธโ˜•๏ธโ˜•๏ธ

[โ€“] Seagoon_@aussie.zone 4 points 1 week ago

I fibbed, I found no efs, i used to discipline to make myself do tasks.

maybe the ef I found was the long term goal.

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