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[-] Deestan@lemmy.world 11 points 1 year ago* (last edited 1 year ago)

Serious question: Why?

Gathering data like this for "curiosity" is understandable, but too vague for medical and personal data.

Without a stated purpose, data can be presented to form any and all kinds of narratives.

Will it be used to form a tabloid piece about "overwhelming majority of people in autism community aren't actually autistic" fuelling some agenda against the "self-identifying victim mentality epidemic"? Because it can, whether it is the intention or not, and I want less of that.

Or is it used to form an opinion on whether a clinical self-diagnosis is important to people? Or difficult to get? If so, please word the questions differently.

[-] avirse@feddit.uk 12 points 1 year ago

Honestly I'd be very surprised to see an online autism community with a majority of people professionally diagnosed, even more surprised if the majority were diagnosed as children. Even setting aside how underdiagnosed large sections of the autistic population are, the people who need to seek support and validation that they belong to a community are much more likely to be those who didn't have the right language or support as a child.

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this post was submitted on 31 Jul 2023
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Autism

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A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.

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