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submitted 3 months ago by Charger8232@lemmy.ml to c/privacy@lemmy.ml

I'm concerned about the privacy implications of DNA testing services like 23andMe or AncestryDNA. What are the potential risks of sharing our genetic data with those companies, and are there any privacy-focused alternatives available?

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[-] zach@lemmy.dbzer0.com 8 points 3 months ago

In the US, insurance companies cannot discriminate based on your genetic data, contrary to what many people in the comments are saying.

https://www.hhs.gov/hipaa/for-professionals/special-topics/genetic-information/index.html

[-] asmoranomar@lemmy.world 10 points 3 months ago

Or what? A slap on the wrist?

[-] zach@lemmy.dbzer0.com 8 points 3 months ago

“The penalties for noncompliance with GINA range from $300,000 per incident when noncompliance is intentional and a minimum of $2500 to a maximum of $500,000, where noncompliance with the law is unintentional.”

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3627538/#R1

[-] asmoranomar@lemmy.world 4 points 3 months ago

It's good that you were able to quote the regulations. You're not wrong, I'm just apathetic; the question was more rhetorical. To be clear: I don't have faith that this is strong enough to deter and/or that governing policies have enough teeth to enforce. I'd like to be wrong, but I'm not hopeful.

[-] janus2@lemmy.zip 3 points 3 months ago* (last edited 3 months ago)

in terms of corporate expenses for legal penalties that's barely a disinterested-grunt-from-parent-in-other-room, let alone a wrist slap

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this post was submitted on 01 Apr 2024
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