I've had long COVID symptons (reduced sense of smell, instantly tired, heart going on a gallop for no or not much reason) for 6 to 7 months after my COVID infection, after which point those symptons suddenly cleared up. At the start I did hospital visits to have my heart checked out and everything, but nothing wrong could be found. I have no trouble believing that some people will never recover.

[–] jeanofthedead@sh.itjust.works 9 points 10 months ago (1 children)

I’m going on 2+ years at this point. Was in the best shape of my life when I was infected. I haven’t been able to properly exercise ever since (without severe repercussions that last several days). My bloodwork, which was previously fantastic, is all over the place now. Outrageously high cholesterol, iron levels, inflammation markers. It’s hard having hope for the future when I don’t see an end in sight.

[–] RunawayFixer@lemmy.world 5 points 10 months ago (1 children)

I hope that you'll be as fortunate as I was.

I knew something had changed when I was sitting in the living room one Sunday and realized that I could smell the food that I was making in the kitchen oven. I had not had that good a sense of smell since before I had had COVID.

The weekend after that, I did light work in the garden and I could work for hours without issue, while 2 weeks prior I had to stop after half an hour.

I did avoid any strenuous activities as long as I had long COVID, maybe this helped my recovery. I wasn't going to go on a hiking trip or fight with bushes, if I couldn't even do a half hour of light work without fainting. I could still do local walks, thanks to my country being as flat as a pancake.

One very big frustration I had, was the feeling of being perceived as an imposter. I was ill, but tests were unable to show anything wrong, as if it was all in my head. But now there's definite scientific proof that long COVID really is a thing, even when traditional tests show nothing wrong with the patient.

[–] jeanofthedead@sh.itjust.works 2 points 10 months ago

Thanks so much- this give me hope!

[–] droog_the_droog@lemmy.world 2 points 10 months ago (1 children)

Sure, I have no doubt about some people being affected in this way. But the scale that the article is talking about is just absurd, to be honest.

[–] RunawayFixer@lemmy.world 7 points 10 months ago

That 10% in the article is people with long COVID, which is not necessarily debilitating. Just having a reduced sense of smell is a symptom of long COVID, but it's not going to stop a runner from running. I tried looking for statistics and I found that in a USA survey, 26% of people with long COVID, reported significant activity limitations. https://www.cdc.gov/mmwr/volumes/72/wr/mm7232a3.htm

It's also all uncharted territory: traditional tests can't identify long covid and there are still breakthroughs being made to figure out what is actually going on with long COVID. It'll be some time before it can actually be tested at scale and even if it can be tested, I doubt that this will be done. As the article suggests, it'll probably be more convenient to try and sweep it under the rug, definitely cheaper.

For now all these statistics are based on external symptoms: people who were diagnosed with COVID (not everyone who had it, was diagnosed), who found that they had long lasting effects (before ending up in statistics, it had to be bad enough for them to seek help) of whom a part has very noticable negative effects (people who did not do much physical activities before, might not even be aware that they can no longer do the physical activities that they didn't used to do), ... So it's error on top of error, a whole lot of unknowns. The percentages in the doomsday article could be accurate, but without the ability of testing, we're not going to find out for a bit longer.

That you personally don't know anyone who has long COVID, does not surprise me. It's such a vague disease that it's not a good talking subject, people just carry on as good as they can. Personally I only communicated my struggle with it to people who were affected by my change in behaviour: I cancelled walking trips and I wanted people to know that it was me, not them. And my garden was a shithole, which was also a me issue.