I'm really sorry to hear about you dealing with this. I have trigeminal neuralgia, which is an extremely painful nerve condition in the face. Thankfully, I finally found a medication regimen to keep the pain to a minimum where (supplemented with cannabis) I can handle things. But recently, I've been going through a mystery health issue and one possible cause is a reaction to one of my medications. It's unlikely, because I've been stable on them for so long, but the only way to find out for sure would be to stop taking both of them and then only take one to see if the symptoms go away. And I don't know if I can handle that because I was at your level a few years ago and I don't think I can go back there.

I don't wish my pain on anyone. Not my worst enemy. And I had to deal with it, like you, all day every day. Excruciating pain. For years. I was even on disability for it because you can't have a job when you have pain flare-ups that make you scream.

And, also like you, I "looked fine" most of the time. Only my wife learned the signs of when I was in lots of pain in public and got me out of there. Because you can't function at all if you can't "pass" as being healthy.

So, again, I am really sorry you have to deal with it. I sympathize 100%. I hope you find a solution. It took me years, but I finally found one.