Edit /u/givesomefucks has now permanently banned two people from Mental Health, a supposed "safe space" in the last 3 hours. That seems odd for a community with an average 1 post per day. And that the other now banned account, /u/betterdeadthanreddit, was banned right after I called it out as being an alt of his along with /u/dingus in the comments here. I'd imagine the comment leading to that lifetime ban doesn't match whatever the comment said, and he's trying to hide that he has a bunch of alts modding a bunch of communities and banning users on this instance for no actual reason.
Hello, I'm relatively new to Lemmy and not sure how the instance administration works.
I spent around 3 hours writing up a long post for the Mental Health community detailing my personal history of symptoms, the issues I had with diagnosis, and the understanding of the root causes of AI that led me to realize what was causing my trouble with the medication I was on as well as why symptoms that were actually caused by ADHD had been diagnosed as Major Depressive Disorder or the like more than once.
Because the post got very long, I decided to break it into sections with headers and some bullets to make it easier to read.
The post had several replies that were all normal discussion on the issue, and violated no rules of Lemmy.world or that community. One of the two mods, presumably u/givesomefucks, removed the post without warning and listed the reason as "AI rambling about serious medication and how the doctors don’t know better."
I tried to message the two mods listed and got no response from either. Since I was in the middle of multiple conversations in the replies, I created a new post questioning deleting a long post in what they describe as a safe space to share and discuss mental health issues.
While continuing conversations in that new post, I got a popup that told me I was banned from the community. The reason they put in the modlog this time was "medical misinformation."
Both of those modlog entries are false. The first is an assumption they made at a glance. They then deleted that post based only on their assumption without bothering to read the post first.
The second is a blatant lie. There is nothing at all in either post that is medical misinformation. In the first post I even took the time to explain the various symptoms that can present depending on which neurotransmitter a person has a deficiency in the availability of as well as why my medication that targeted only one of those neurotransmitters was causing me to be tired even though it was a stimulant, and how a severe deficiency of both neurotransmitters can be diagnosed as depression since those symptoms aren't commonly associated with ADHD.
All of that information is accurate and all of that information can be verified.
In the second post, the one that I was banned from the community for, I had never even given medical information in the post. It was entirely calling them out for deleting a post without bothering to even read it in what they claim to be a mental health safe space.
The first post URL is: https://lemmy.world/post/50462838
and the second post is: https://lemmy.world/post/50461425
You'll note that one of the comments is a user saying that the entire lemmy.world instance isn't a safe place for any community.
The Mental Health community averages one single post per day. It's not a lot to ask of a moderator, and something they volunteered for. This is not how to grow a new communication platform.
It has now been 2 hours since my first post was deleted and 30 minutes since I was banned from the community. I have messages both moderators twice now, and neither of them has bothered to reply.
If the moderators of the lemmy.world Mental Health community are unable to keep up with that whole post per day by actually reading it and communicating with the poster if they see an issue, and they need to rely on removing posts based on blind assumptions and then instead of correcting their mistake doubling down by banning users based on complete lies then I volunteer to take over as moderator of that community.
Couple of things. First, I'm sorry for your mental health struggles and your ban from a mental health community.
I think what you'll find is that people get such a hard on for hatred of AI, that you'll likely get posts banned and removed from other communities if people think you are using it. Is it fair? It's besides the point, really. It's just that unfortunately it's not going to be very popular...fairness or not. As you've seen, even suspected AI use has the risk of people acting this way to you.
Next, neurotransmitters and the brain are a hell of a lot more complicated than they appear. Remember when everyone thought that major depressive disorder was simply a deficiency in serotonin? Well, modern evidence shows that that isn't at all the case and it's much more complicated than that. It doesn't change the fact that SSRIs can be beneficial, but it changes our understanding as to how and why they may be.
ADHD is not simply a deficiency of dopamine and norepinephrine. Reducing it to that is highly inaccurate. If that were true, then drugs that increase both of these would be curative. But they aren't. Symptoms are managed with ADHD drugs, but you'll still struggle.
ADHD involves disturbances of dopamine and norepinephrine, but as to why and how that comes to be is another question. You can look at it as correlation versus causation. There is clearly an association there, but not necessarily a causative one.
Psychological disorders are no longer viewed as simple dediciencies in specific neurotransmitters. That is really not the case anymore with modern research. Altered neurotransmitters are a symptom and trying to alter them in other ways with drugs may or may not help a given user. I'm not saying that psych drugs are useless or anything, just that they are more complicated than you'd think. I take a psych med, myself.
So in that regard I can see how someone would call an assertion with that as misinformation.
At any rate, I wish you well in your mental health journey.
Edit: It appears my app does not show display names. Looking at you display name in an internet browser, I'd agree that that also likely plays a factor. You've chosen a deliberately shocking username, so you have to remember that people are going to form opinions of you from your words and actions like that. "Rules" aside, people are going to make judgements about the way you express yourself. It's a fact of life.
The only person who acted that way was the moderator who removed the message without bothering to read it. The many people who had replied before that had no issue. Since they had bothered to actually read the words instead of simply glancing at the fact that there were headers it would have been obvious it hadn't been written by AI.
I never said they weren't extremely complicated. I was attempting to provide a surface level explanation of how people with symptoms that don't get listed as typical ADHD symptoms such as complete apathy can actually be showing an unusual symptom of ADHD that doesn't get enough attention and is often misdiagnosed.
Of course the brain is extremely complicated. One of the reasons for taking the time to write the post was having ADHD repeatedly misdiagnosed as flavors of depression because the combination of Aphantasia and an intentional inner monologue meant my internal experience was unlike those of the people writing out what to look for and so I wouldn't be using words that would make a mental health professional think of noise.
Both dopamine and norepinephrine operate on a U-curve where both too little and too much cause issues. As people have varying levels of availability of the two and many of the medications for the condition effect both to varying degrees it's a balancing act.
I never claimed anything was the root cause of anything. I did not claim to be a magic wizard who is capable of fully analyzing and understanding the minutia of the many different chemical reactions taking place in every cell in the human mind or body at any given instant. In fact I pointed out that studying the available level of neurotransmitters where they need to be in order to be effective can be a bit difficult since a lot of those things can't be tested on a living person.
I never said they are. A simple deficiency would be the body lacking a given thing, it would be a production issue. If that were the case no ADHD medication on the market would be effective, because none provide those neurotransmitters. The issue is a deficiency in the availability of the neurotransmitters. That could primarily come from either the neuron failing to release them rapidly enough, or the transporter removing them too quickly. The transporter is considered the most likely primary issue, though it's very possible that multiple things play in to it in combination
Your statement about 'altered neurotransmitters' doesn't make any sense. The neurotransmitters themselves are fine, and no ADHD medication attempts to alter them.
At the tail of that long response (which I appreciate) separated from anything else you say:
What assertion would that be?
And to your edit, once again that's irrelevant. You're more than capable of looking at the mod log. The mod removed the first post claiming I was using AI and saying I know better than doctors. Neither of those things are accurate. The mod removed the second post in banning me for "medical misinformation." They did not attempt to say what they found to be misinformation, did not bother to respond to the message I had already sent them questioning the removal of the first post, and still have never bothered to reply.
Note that the post that they banned me for misinformation for was the second post, not the first. The entire body of the second post was questioning the act of removing a post they clearly hadn't read in what the sidebar claims is a safe space to discuss mental health issues. That is what led to me being banned for "medical misinformation."
It's indefensible. It's obvious what happened. They assumed a post was AI and deleted it without bothering to read it. I posted again questioning that and so they banned me. They didn't want to put "respect muh authoritah" as the reason for permanently banning a user in the modlog, so they lied and wrote "medical misinformation."
Ahh, now it makes more sense. You're either trying to shift blame from your friend or you're /u/givesomefucks using an alt. The two accounts were made within 20 days 3 years ago, you both mod multiple communities.
Same situation with the other account, /u/betterdeadthanreddit.
/u/betterdeadthanreddit /u/givesomefucks /u/dingus
All 3 accounts created in the same time period 3 years ago, all 3 moderators of multiple non-overlapping communities, and all 3 of them chiming in on this issue on the Mental Health community as seen here: https://lemmy.world/post/50464079
Can we get an instance admin to check in to this please?
You'll find a lot of accounts with similar creation dates due to the Reddit API thing.
Of course, and you all also just happened to show up here at the same time I was calling that out and delete of course delete the post I'd just linked where any user could see there were in the end 5 accounts all made within the same few days all with the same pattern who all jumped out of nowhere to attack a user who dared question why someone had been banned like that.
Aww, you even banned this account with your alt for being a "troll" to make it look like it isn't the same person. Now I know it is.
I know you are hurting right now and you need somewhere for that hurt to go, but I am not your enemy. I am not familiar with the users you posted, nor do I have the ability to change your situation. I'm just some random person online who is a bit bored on my weekend off haha. It's somewhat marred by the fact that Lemmy keeps erroring out every time I try to do something, but alas.
To be frank with you, I'm not interested in having some long protracted debate with you about the content of your original post.
I'm sorry for the ramble (we both appear to be prone to it lol) and I know this sounds a bit out of left field, but have you heard of DBT? I don't have ADHD myself, but I struggle with the intensity of my emotions when something happens to me. I've read that a lot of people with ADHD struggle with this too. You are absolutely valid in being hurt and upset, but your own behavioral response afterwards isn't necessarily helping you out. I've been trying my best to have a more nuanced understanding of things, myself, life, etc., and to be less polarizing in "right" vs. "wrong". I don't always succeed (as no human is perfect), but I feel as though it has helped me out.
I do wish I had another mental health community to direct you towards that would welcome you, but unfortunately I don't at the moment.
I can only hope you do something fun/nice for yourself today to try to make what happened weigh less on your mind! Wishing all the best!
Of course, when I call out your messages and ask you to specify what assertion you were saying your could see as being medical misinformation you are unable to actually do that and so you deflect to acting as though you're worried that I had issues controlling my own emotions.
Instead of backing up your own statements and words, you call into question the personal emotional state of the other person. There's a term for that.
This is a support thread. I was giving some of my thoughts on it. It didn't seem to be a space where a back and forth debate made sense.
I posted the comment you replied to when you started attacking me and started accusing me of things that I did not do. I did not do it before you attacked me.
Please understand that you are speaking to another human when you are doing this. I am a living, breathing being with my own thoughts and feelings. And you are being hurtful.
Being hurtful is not only unfair to me, but you are hurting yourself in the process. I found a lot of help discovering DBT, and I just rambles on about it as something that felt relevant to the scenario.
Note that you walked into this thread and accused me of what could be seen as a rather serious wrongdoing. You made a long post and ended in saying that you would understand someone seeing my assertion as being that. Medical misinformation.
When I replied rebutting your reply and questioning for you to point to a specific assertion that I made that you are claiming would be reasonably considered medical misinformation, you instead deflect to questioning my emotional stability and control.
After that was called out you doubled down on that and now also try to assert that I am the bad monster causing you emotional harm in this situation.
It seems likely that you are correct that you do have issues controlling your emotions, however that's not an issue I've ever had. I thank you for your deep and genuine concern.
However the only words I'm interested in seeing from you are words backing up your own statement. Specifically, what is the assertion you claim that I made which could be reasonably considered medical misinformation?
nobody here can help you. you need a professional. stop pushing the responsibility for your own care onto other people.
You don't seem to be referring to the post here, and don't seem to be replying to the content of the reply you replied to.
This is the Support community. "Nobody here can help you" seems a strange response. Looking for support with Lemmy.world issues is what this community exists for.
Can you show where I pushed the responsibility for my own care on to other people?
I did the opposite of that. I made a long, detailed post explaining the difficulties I had getting an accurate diagnosis and effective medication, the understanding that led me finally doing that, the interaction of other differences between human frames of reference that led to professional confusion, and even a surface level seminar on the neurotransmitters behind the varying symptoms and how the medication I was on and the one that I switched to effect those neurotransmitters.
Nothing in any post I've made was looking for mental health help. It was providing information to help others who may share my symptoms and struggles in getting help for themselves.
The post isn't deleted. Maybe it's more of an anti-you conspiracy that we're all in on but the site's been having issues. Chances are pretty good that you got a blank page because of a server error (or, again, the conspiracy) but it's still there.
I think there's some confusion. The linked post isn't deleted. But the linked post is in an ADHD community. It sounds like OP posted the same content or linked to it in lemmy.world/c/mentalhealth . I do not see evidence of it in the mental health community. So it sounds like it WAS deleted from the mental health community.
The linked post I'm referring to is from this part of the comment I replied to:
That post is "Shortest subscription ever." by Rhynoplaz in !mentalhealth@lemmy.world.
Did you forget what account you're using? You were banned from Mental Health right after I called your account out as an alt. You'd think the big red box telling you you're banned would have caught your attention looking at the post.
Your comment above states that the post was deleted. It was not. What does my ban have to do with the presence or absence of the post?
Maybe it’s more of an anti-you conspiracy that we’re all in on but the site’s been having issues. Chances are pretty good that you got a message had text errors because of a server error (or, again, the conspiracy) but it’s still there.