It's behind a hard paywall but Robert_Kennedy_Jr found the article - https://hexbear.net/comment/7361718
this post was submitted on 06 Aug 2026
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In High School, I started coming home most days with a pounding headache. My routine became going to lie in a dark room for at least 30 minutes, often for fully hours until dinner was ready. Bringing up the possibility that these might be migraines, my mom brushed it aside saying something like "I have migraines, and they make it where I can't do anything all day, sometimes for days, those aren't migraines" so I ignored my chronic headaches. For 20 years.
Until I started having sporadic limb paralysis and non-epileptic seizures and got diagnosed with Functional Neurologic Disorder after a year's waiting and tons of tests. Eventually, I got told by my neurologist that she couldn't treat my seizures, but she wanted to know more about my "mild, perpetual headaches" and I told her. She told me those are, and had always been, migraines. And migraines she could treat. I've had one seizure since starting the migraine medicine over two months ago, and it was on a very busy day after a week of very bad sleep. I don't think I would have FND at all if I hadn't cooked my brain with repressed pain transmitters for 20 years.
Also, during my flareups, I use a cane if I want to go on a walk or really to be more than 30s away from a seat, and I am assuredly not a "girl". I may one day be a woman, but if you look at me you'd see a cis white man.