this post was submitted on 26 Jan 2026
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disabled
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My thoughts these days go to the medical professionals who, despite the pressures and stress they're facing, are putting in the effort and time to understand our struggles, take them seriously, and try to help to the best of their ability, sometimes even beyond. All medical professionals should be like this; I'm glad there's at least some who are.
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Mask up, love one another, and stay alive for one more week.
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What the actual fuck is going on over there on the island? Like, holy heck, does anyone of these people communicate with each other? I'm sorry again that you have to deal with this, and losing movement in two toes is absolutely terrifying. Is there any other option left? Anything you could try?
I got an appointment with a GP today, because of the folic acid I now have full blown cystitis again. Also my blood test shows that the folic acid has raised my folate level just enough to not be currently eligible for an NHS IV folate drip. Still low level though. The doctor gave me some antibiotics for the bladder and said if I can't take the tablets any more, all we can do is wait for my folate level to drop down lower again and then maybe I can get the IV. She told me to get my levels retested at the end of March. And I am really terrified about the neurological symptoms and loss of movement in my toes but I am still on the waiting list to see a neurologist about that. Although all the GPs tell me it's almost certainly the low folate levels causing it and nothing the neurologist can do. Like everything, I have to wait until the situation gets worse before they do anything.
That's... literally not a solution, that's just leaving you hanging. What the actual fuck?!
I've just accepted that this is what passes for medical care and there isn't anything I can do about it. I've even tried complaining to my local MP but he does nothing, usually doesn't even respond. I'm just powerless to change things.