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On Self-Diagnosis
(lemmy.dbzer0.com)
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this post was submitted on 05 Sep 2023
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Autism
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Well, I live in central Europe. In the second largest city in my country. There are two places that diagnose adult females. Waiting list says it takes 3-6 years to even start the process. I'm 42 and I'm not going to waste more years on fighting my brain until they finally have the time to diagnose me. And the most important thing is even when they do diagnose me there won't be any help that I don't have to find myself. It will simply be a note in my medical file.
I already know I'm neurodiverse. I've been diagnosed with ADHD last year and the neurologist who diagnosed me strongly suspected autism as well. She's just not licensed to diagnose me officially.
So I went to look for resources, for books to help me understand why I might be the way that I am. For communities who might understand my struggles.
People in my life don't treat me differently because I don't demand accommodations. I might say that I need a short break to clear my mind, that I need some space or that I don't really feel like talking but that's it. I don't demand they do anything differently, I simply learned more about myself and know how to react differently to things. And that's what self diagnosis is about for me. Finding ways to make your life easier for yourself and not demanding others to accommodate you.
There are certainly people out there who claim to be neurodivergent or to have this or that mental health issue and demand to be treated differently. That is a problem and I acknowledge that. Especially with the rise of TikTok videos etc. it's getting worse. There is a difference between those people and people who are just looking for ways to understand themselves better, finding ways to help themselves and taking the responsibility for doing that on themselves.
Criticizing the first group of people is one thing but telling the latter one their experiences are not valid is very hurtful and doesn't help anyone.
Thank you for your patience in responding to hurtful and dismissive ignorance. The "it works for me so you're lying!" attitude towards the medical system here is maddening.
Well, I do kind of understand the position. I'm bothered by all those people saying "everyone is a little bit ADHD" as well.
I just think there needs to be an open dialogue about self diagnosis and that there is a difference between people just claiming something and people who did their research and "soul searching", maybe even have professional opinions but no official diagnosis.
In "Unmasking Autism" Devon Price called my generation the lost generation. Women and minorities who grew up during a time when autism was being diagnosed but the criteria were based on behavior of a Caucasian young boy. We were overlooked and had to fight for ourselves. When I went to elementary school Asperger's syndrome wasn't even in the DSM yet.
Tbh, I'd much rather be neurotypical or at least have resources to actually help me. Unfortunately that's not an option so I'm doing the best I can.
I'm so sorry you're wishing to be someone else. YI imagine you must experience significant difficulties to get there. Still, I'm happy you have the motivation to continue making changes in your life so you could be happy. If you find anything useful, please share so that us other autists can learn about it :)
Thank you! I don't really wish to be someone else. I just spent the first 20 years of my life being told and thinking I was stupid, lazy and incapable of making friends. The next 20 years were spent masking extremely well and passing for "normal", except for those total breakdowns every couple of years when I couldn't really eat, sleep or communicate for a few weeks. I was diagnosed with depression, anxiety, PTSD etc. but the meds and therapy didn't really help that much. Finally I got a new therapist, a young one, fresh from uni and full of new information and ideas and after reading my file she made me take tests for ADHD and autism. Both were pretty conclusive but she's not licensed to diagnose it. I got diagnosed with ADHD almost two years ago and got meds and better help but there's still a lot of grief for all the years that could have been better and that's what makes me wish to be different sometimes.
Hi!
How have you been? Is the Strattera still working out for you?
Back on my BS
That wasn't my point, in any way shape or form.
I gave up on psychologists and psychiatrists when I was very young. I decided they were worthless, and that I would define myself and find what works for me.
I don't claim to have "autism" or "adhd" or anything else because labels do not matter.
That being said, I also recognize and have seem firsthand through my friends that therapy and treatments can help.
I would wager that not everyone that claims to have diagnosed themselves has the capacity for understanding that you seem to.
You seem like you actually tried the system, then used it as a sort of guideline for defining yourself. I'm a little confused why you would continue to use their terminology, but I also accept that it's not really my business what you call yourself.
I don't know you, so I don't use definitive terms. But I accept that there are merits to self-diagnosing, if you are truly seeking to understand yourself.
I'm sorry you've gone for so long without the help you need.