this post was submitted on 14 Apr 2025
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disabled

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Welcome to c/disabled, an anticapitalist community for disabled people/people with disability(s).

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Hi everyone! That's right, it's time for another c/disabled megathread.

Update on the meds: they work! Quite well, actually. I feel like I'm finally functioning at a reasonable level, like I was not only getting stuff done, but I'm now able to actually effectively multitask (as much as one can lol). I'm quite happy with how it's working, and I might not even need an SSRI at this point. If I'm getting anxiety from the meds, I'm not feeling it, because they actually reduced the amount of anxiety I have to deal with. I don't know how (thinking ADHD-induced anxiety), but yeah, I'm a lot better than I was just last week. Quite happy for that, might actually be able to manage the end of the semester without crashing and burning this time around.


As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

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[–] DisabledAceSocialist@hexbear.net 9 points 2 days ago (1 children)

I once had a black girl working as a carer with me and the elderly called her awful names and once she got so angry about it she threw a glass of orange juice over one old woman. The girl got fired. sadness It's so unfair, the elderly just get away with it because they're supposedly confused.

[–] un_mask_me@hexbear.net 6 points 2 days ago (1 children)

That's so fucked up. Endless OJ on that woman in hell if it exists... Honestly that job sounds pretty awful just for dealing with the people alone.

[–] DisabledAceSocialist@hexbear.net 4 points 1 day ago (1 children)

It was difficult and could be miserable... but nowhere near as miserable as being unemployed and fighting endless benefit claims.

[–] un_mask_me@hexbear.net 3 points 1 day ago (1 children)

I hear you. You holdin up okay?

[–] DisabledAceSocialist@hexbear.net 4 points 1 day ago (1 children)

No. I'm wondering if I should go to hospital about my achilles tendon, last time this happened they put me in a plaster cast. But I have my foot surgery tomorrow. I don't know if I can cope with one leg in a plaster cast and both feet needing daily bandage changes. How would I even shower like that? I don't know what to do.

[–] un_mask_me@hexbear.net 3 points 1 day ago* (last edited 1 day ago) (1 children)

I'm so sorry, love. cuddle

It does seem like maybe trying to get seen by a doctor for it would be the best route if it's causing you such pain, but I know that's a crap-shoot with the way the system is set up where you're at. Do you think they'd wait to cast your tendon until your surgery sites heal? Maybe having time in between would make it easier to deal with, rather than all at once. I've helped someone who had to wrap their entire leg in a trash bag, sealed with surgical tape, every time they had to shower/bathe while they were stuck in a cast for an injury, also had to tape saran wrap/cling wrap around a port which was time-consuming but kept the area dry (which we would sponge-clean after), dunno if that would be doable for your particular situation. I'm not the best for advice, so I apologize if I'm not helping.

[–] DisabledAceSocialist@hexbear.net 2 points 1 hour ago (1 children)

Thanks. I have a physio appointment on Tuesday, I doubt they'll really do anything but maybe they'll at least give me crutches so I can get out a bit without using it.

Anyway I had an awful time this past 24 hours. I know this sounds weird and disgusting, but I got a weird feeling in my crotch. It felt like someone had rubbed menthol on it. At first I thought I was having an allergic reaction to a sanitary pad, so I removed the pad but the feeling didn't go away. After hours, it spread all the way down my right leg. I googled it and it said it could be a compressed nerve and required urgent medical attention. So I went to hospital and sat there. The triage person didn't seem to think it was very serious and looked at me like I was a weird pervert when I described how it had started in my crotch. After 5 hours of being in the waiting room there was no indication that I was going to be seen any time soon and I couldn't stand sitting there any more so I went home. I went to bed where the feeling got worse. Today it spread into my right arm and I managed to get a GP appointment. By the time my appointment came the feeling had spread into the right side of my face and I was starting to suspect it was a migraine. The GP checked me to make sure it wasn't a stroke and agreed it was a hemiplegic migraine. I took my migraine med and the feeling mostly subsided. Who on earth would ever think that a migraine could start in your crotch? Absolutely insane. Just when I think this condition can't get any worse, it does.

I also had my final foot surgery this afternoon (I was wondering if I'd make it what with the other issues going on but I found out it was a migraine not a stroke just in time to go.) At least that is one problem crossed off my list.

[–] un_mask_me@hexbear.net 1 points 52 minutes ago (1 children)

Holy shit, a migraine did that? (I don't find it gross at all, a lotta nerves and veins etc run through that area, it's a sensitive place.) I'm glad it wasn't a stroke and was helped with meds, but I'm so sorry you had to suffer for so long with it escalating like that. Jesus.

Good to hear you got to the surgery ok as well, and hoping you have a quick recovery time. Sounds like you deserve some much needed rest, comrade, that's a lot just in the span of a couple days. Sending hugs if wanted, we're here with you.

[–] DisabledAceSocialist@hexbear.net 1 points 38 minutes ago

Thanks. Yeah I am still so shocked that a migraine can start in the crotch, it's just mental. I feel kind of weird now, like I need rest after such a rough 24 hours but also have been cooped up indoors for so long I wish I could hike for miles too.