disabled

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Welcome to c/disabled, an anticapitalist community for disabled people/people with disability(s).

What is disability justice? Disability justice is a framework of activism which centers disabled people of multiple intersections. Before participating in in this community, please read the Ten Principles of Disability Justice.

Do I count as disabled/a person with disability(s)? "Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Follow the Rules:

  1. This comm is open to everyone. However, the megathread is only open to people who self-identify as disabled/a person with disability(s). We center the experiences of disabled people here, and if you are abled we ask that you please respect that.
  2. Follow the principles of disability justice, as outlined in the link above.
  3. Zero tolerance for ableism. That includes lateral ableism. Ableism will result in a ban.
  4. No COVID minimization.
  5. Do not offer unsoliticed health advice. We do not want to hear about the wonders of exercise or meditation, thank you very much. Additionally, do not moralize health or "healthy choices".
  6. If posting an image, please write an image description for our blind/low vision comrades. (If doing this is inaccessible to you, DM one of the mods and we will help.)
  7. Please CW and spoiler tag discussions of ableism.
  8. When it comes to identify-first vs person-first language, respect the language that people choose for themselves. If someone wants to be referred to as a disabled person, respect that. If someone wants to be referred to as a person with a disability, respect that.
  9. Try to avoid using ableist language. It is always good to be mindful of the way language has been used to oppress and harm people.
  10. Follow the Hexbear Code of Conduct.

Let's kick back and have fun!

founded 6 months ago
MODERATORS
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Hi Everyone!

As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Alright, with that out of the way, let's talk about COVID-19, specifically the kind that messes with you for long time, possibly forever! <-- (so fun /s)

From the Wikipedia Page on Long COVID:

Long COVID or long-haul COVID is a group of health problems persisting or developing after an initial period of COVID-19 infection. Symptoms can last weeks, months or years and are often debilitating. The World Health Organization defines long COVID as starting three months after the initial COVID-19 infection, but other agencies define it as starting at four weeks after the initial infection.

Long COVID is characterized by a large number of symptoms that sometimes disappear and then reappear. Commonly reported symptoms of long COVID are fatigue, memory problems, shortness of breath, and sleep disorder. Several other symptoms, including headaches, mental health issues, initial loss of smell or taste, muscle weakness, fever, and cognitive dysfunction may also present. Symptoms often get worse after mental or physical effort, a process called post-exertional malaise. There is a large overlap in symptoms with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

The causes of long COVID are not yet fully understood. Hypotheses include lasting damage to organs and blood vessels, problems with blood clotting, neurological dysfunction, persistent virus or a reactivation of latent viruses and autoimmunity. Diagnosis of long COVID is based on (suspected or confirmed) COVID-19 infection or symptoms—and by excluding alternative diagnoses.

As of 2024, the prevalence of long COVID is estimated to be about 6-7% in adults, and about 1% in children. Prevalence is less after vaccination. Risk factors are higher age, female sex, having asthma, and a more severe initial COVID-19 infection. As of 2023, there are no validated effective treatments. Management of long COVID depends on symptoms. Rest is recommended for fatigue and pacing for post-exertional malaise. People with severe symptoms or those who were in intensive care may require care from a team of specialists. Most people with symptoms at 4 weeks recover by 12 weeks. Recovery is slower (or plateaus) for those still ill at 12 weeks. For a subset of people, for instance those meeting the criteria for ME/CFS, symptoms are expected to be lifelong.

Globally, over 400 million people have experienced long COVID.

Mask up, love one another, and stay alive for one more week.

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Unfortunately I don't have the energy to put together some info for the mega this week, hopefully I can pull together something for next week though. As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

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A new week, a new mega! Welcome all disabled comrades. As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.


What is Disability Justice?

... In 2005, disabled queers and activists of color began discussing a “second wave” of disability rights. Many of these first conversations happened between Patty Berne and Mia Mingus, two queer disabled women of color who were incubated in progressive and radical movements which had failed to address ableism in their politics. Their visioning soon expanded to include others including Leroy Moore, Stacey Milbern, Eli Clare and Sebastian Margaret. These conversations evolved over time, at conferences, over the phone, formal and informal, one-on-one and in groups.

While every conversation is built on those that came before it, and it’s possible that there were others who were thinking and talking this way, it is our historical memory that these were the conversations that launched the framework we call disability justice.

Given the isolation enforced by ableism and capitalism, many of us have often found ourselves as leaders within our various communities, yet isolated from in-person community with other disabled people of color or queer or gender non-conforming crips. Many of us have found “liberated zones” online that celebrate our multiple identities. Disability justice is a developing framework that some call a movement. We are still identifying the “we,” touching each other through the echoes of each other’s hopes and words.

Given this early historical snapshot, we assert that disability justice work is largely done by individuals within their respective settings, with Sins Invalid and the Disability Justice Collectives based in NYC, Seattle, and Vancouver, B.C., being notable exceptions. These groups and organizing structures often come into being, fall apart and regroup with different names and configurations over time. Online groups like Sick & Disabled Queers can offer opportunities for people with disabilities to communicate and create new norms together. Some voices may emphasize a specific aspect of disability justice over another, which can be expected in all early movement moments. However, what has been consistent across disability justice - and must remain so - is the leadership of disabled people of color and of queer and gender non-conforming disabled people.

Disability justice activists, organizers, and cultural workers understand that able- bodied supremacy has been formed in relation to other systems of domination and exploitation. The histories of white supremacy and ableism are inextricably entwined, created in the context of colonial conquest and capitalist domination. One cannot look at the history of US slavery, the stealing of Indigenous lands, and US imperialism without seeing the way that white supremacy uses ableism to create a lesser/“other” group of people that is deemed less worthy/abled/smart/capable. A single-issue civil rights framework is not enough to explain the full extent of ableism and how it operates in society. We can only truly understand ableism by tracing its connections to heteropatriarchy, white supremacy, colonialism, and capitalism. The same oppressive systems that inflicted violence upon Black and brown communities for 500+ years also inflicted 500+ years of violence on bodies and minds deemed outside the norm and therefore “dangerous.”

Furthermore, racism, anti-Islamic beliefs, ableism and imperialism come together to feed us images of the “terrorist” as a dangerous Brown enemy... All this is compounded by the ways ableism, along with queer-hatred and the violence of the gender binary, label our bodies and communities as “deviant,” “unproductive,” and “invalid.”

A disability justice framework understands that:

  • All bodies are unique and essential.
  • All bodies have strengths and needs that must be met.
  • We are powerful, not despite the complexities of our bodies, but because of them.
  • All bodies are confined by ability, race, gender, sexuality, class, nation state, religion, and more, and we cannot separate them.

These are the positions from which we struggle. We are in a global system that is incompatible with life. The literal terrain of the world has shifted, along with a neo-fascist political terrain. Each day the planet experiences human-provoked mudslides, storms, fires, devolving air quality, rising sea levels, new regions experiencing freezing or sweltering temperatures, earthquakes, species loss and more, all provoked by greed-driven, human-made climate chaos. Our communities are often treated as disposable, especially within the current economic, political and environmental landscapes. There is no way to stop a single gear in motion — we must dismantle this machine.

Disability justice holds a vision born out of collective struggle, drawing upon legacies of cultural and spiritual resistance. Within a thousand underground paths we ignite small persistent fires of rebellion in everyday life. Disabled people of the global majority — Black and brown people — share common ground confronting and subverting colonial powers in our struggle for life and justice. There has always been resistance to all forms of oppression, as we know in our bones that there have also always been disabled people visioning a world where we flourish, a world that values and celebrates us in all our beauty.

Source: Sins Invalid


Mask up, love one another, and stay alive for one more week.

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I recently went to a meetup for a Leftist group in my community. I made it very clear when I met them and during the group that I was disabled and that's what radicalized me.

During the meeting a lot of talk was going towards things like "What you can do in your community" which was heavily workplace focused, unions, etc. I totally get that.

However when I asked about what kind of role I could play and said I couldn't participate in public facing events, I got some pushback like "That's not everyone's strength but you can get better at it/It's good practice". I probably didn't make it clear enough that it was related to my disability but I felt a little bit bummed by that.

They further went on to saying that in the end they're looking to get people educated in theory and build "leaders" in the community and that's the most important part. But I'm never going to be a leader. I've tried to join local groups but I'm always on the fringe of them and also can't participate fully due to my disability, including disability related groups I've tried to join. I've been told I could be a great case manager but again I just can't interface with the general public like that.

I'm conflicted about going again due to this. I felt a bit like I would be a leech just doing some of the readings and not contributing to the community in the way that others are going to be doing. I did say I would be happy to support fellow comrades in the group if they needed help with any medical or social support resources in the area.

What place do disabled people have in the revolution or groups like this, really? I mean the best I'm realistically going to get is infodumping to someone I'm never going to see again about communism in rare scenarios. I don't have a wide social network and most people I know have similar political views to me.

I could probably speak to the group further about this but I feel a little bit tired being placed into the role of "disability educator" and am kind of feeling like maybe I should not bother.

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I'd like to learn more about how alt text is used and how to properly construct alt text in a way that is helpful and usable. I've been looking for advice but regrettably most of the sites I'm finding are not helpful. Many sites are marketing scum talking about how to use alt text for SEO. Others are government or corporate compliance sites that are clearly describing how to meet minimal legal compliance obligations.

Could anyone point me at some information from people who use alt text explaining what is helpful for them? I'd like to know what kind of formatting works well for text-to-speech services and other assistance systems, what level of detail and description is appropriate, and especially how people actually use alt text when they're browsing web sites; What kind of information would a user like to have to get the most out of the website they're viewing?

Any help would be appreciated. Cheers!

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(Image from the 1977 504 sit-in.)

Welcome to the first weekly disabled community discussion thread for the week of 10/28/2024 — 11/3/2024.


This community is brand new! Everyone is welcome to post new topics and comments. However, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.



Disabled people in the U.S. today experience a poverty rate of approximately 30 percent; comprise 40 percent of the total homeless population; have an active labor market participation rate of less than 20 percent, despite self-reporting a preference to do so at a rate well over 60 percent. Hundreds of thousands of disabled people remain today living in institutional or carceral environments, such as nursing homes or prisons, where conditions tend towards the cruel or barbaric.


Thus, when we ask the question, what is disability, we are not really providing a full answer if we only talk about physiology, biology, or even identity reduced to a cataloging of manifest limitations or functional deficits. In fact, disability – or, to put it perhaps more accurately, disablement – is a dialectical phenomenon arising from existing political, economic, and social relations in society.


While variations in human bodies, minds, and behaviors – up to and including those traits which might be termed ‘impairments’ – have always been an indelible and essential aspect of the human species, disability as we have come to understand it in the modern era is neither eternal nor transhistorical.


The notion that a group of people – with a vast array of completely different traits, capacities, morphologies, and phenotypes – could be lumped together and labeled according to their relative lack of generalized “ability,” in the abstract, is in fact endemic to the particular period of more recent human history signaled by the emergence and dominance of the capitalist mode.


Specifically, what is the relationship between disabled people and the working class, as such?


... we should hold an expansive conception of disability, which understands it both in terms of class location, but also more generally as a phenomenon less immediately relevant to the positions of the classes than to the processes intrinsic to the relations of the classes. In other words, centering the analysis of disability on the processes of labor commodification, exploitation of labor, market competition, and class division.


Put differently, the conditions that reproduce the division of society into separate classes, and in particular, reproduce that class of people whose lives are wholly determined by the commodified value that their labor power can purchase on the capitalist market, are the same conditions that reproduce a subclass of people whose very existence is diminished and devalued according to the relatively diminished and devalued worth of their labor power as measured by the logic of commodified market competition.


Insofar as the value of commodity labor power under capitalism is both a creation and a measure of the rate of exploitation obtaining in the market – that is, the rate at which capitalists can competitively extract surplus value from the productive labors of the working class – then the simple realities of human physiology, let alone the complex realities of biopolitics, mean that there will always be and must necessarily be a constant proportion of the working class whose commodified labor power manifests as a “disability,” with the attendant forms of oppression concomitant thereto.


The struggle against disability oppression should be seen as innately allied with all other struggles born of – and against – capitalist oppression. Specifically, disablement is a form of oppression arising from the system of exploitation of labor, and therefore the historical struggle of the working class against exploitation.

from Keith Rosenthal of Tempest Collective



Mask up, love one another, and stay alive for one more week.

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"We are no longer counting food that someone gives you as income when we figure your SSI payment."

This came into effect on September 30, but they just informed SSI recipients (using the future tense) this morning.

You mean they can just change these awful rules without needing an act of Congress to do so? Incredible. We suffered for years for no reason! But don't worry, our call is important to them:

Second, this final rule promotes equity. SSI recipients, by definition, have low income and resources. Because low-income people disproportionately encounter barriers across a range of social, health, and economic outcomes, our goal is to improve their circumstances, thus improving equity.

Incredible. You're the ones who legally require that we have low income and resources! honk-enraged

(Edited title)