cross-posted from: https://lemmy.world/post/17415297

This article highlights why it is important to include people within the disability community to help guide the development of new AI technologies.

When Luca was born in a Perth hospital two years ago, it flipped his parents’ world in ways they never expected.

With the joy came a shocking diagnosis: Luca had cystic fibrosis. Then Australia - Laura Currie and her husband Dante’s home for eight years - said they couldn't stay permanently. Luca, his parents were told, could be a financial burden on the country.

“I think I cried for like a week - I just feel really, really sorry for Luca,” Ms Currie says. “He's just a defenceless two-and-a-half-year-old and doesn't deserve to be discriminated against in that way.”

With a third of its population born abroad, Australia has long seen itself as a “migration nation” - a multicultural home for immigrants that promises them a fair go and a fresh start. The idea is baked into its identity. But the reality is often different, especially for those who have a disability or a serious medical condition.

I am posting this here because it is the closest to a UK specific disability community.

If this is invalid please let me know. While I am not comfortable setting up a UK disability and benefits community alone. I am happy to help run one. It will just need a good few members willing to take an active role.

This post really is to discuse ( and rant) about the proposed changes to PIP the gov is proposing.

What really annoys me. Is the government seems to be getting away with pushing false data.

They keep using the differences in acceptance from 2010 to now.

With 0 recognition that the 2010 rejection rates were seriously flawed. With many winning appeals after being forced to take the gov to court. Where well over 60% were seen as false rejections.

Plus multiple reports of suicide due directly to DWP actions. It really bothers me that no media is pointing out this clearly false data.

While plenty are pointing out the culture war that the tories are clearly trying to start. Some of the charities challenging these distorted claims seems to be needed.

Idk how many people know about it, but July is disability pride month! It's a moderately new celebration to the world, since it started in the US.

The first disability pride day was held in Boston after the signing of the ADA in 1990. It started as one day and became a month long thing about 2015.

Here, protests began around the ITV telethons for funds for disabled charities in 1992. Disabled activists blocked access to the studios as a result of the growing feeling of being made to be a spectacle and object of pity rather than functional members of society.

Disabled civil rights groups held protests and demonstrations which eventually led to the passage of the Disability Discrimination Act (DDA) in 1995 after 14 unsuccessful attempts at similar legislation throughout the early 1980s and mid-1990s.

Due to the many shortcomings of the DDA and continual campaigning, the Equality Act replaced it in 2010.

There's more info on the history of disability rights in the UK here if you're interested in a longer read.

Disability Pride (to me) means that I'm proud of everything I can do, and that I have both abilities and disabilities. It means that my disabilities don't make me lesser, and that I deserve the same rights and opportunities as anyone. That my value as a person isn't measured in how productive I am, and that I deserve opportunities to contribute, participate in society at large, and be supported as I need (because a society should take care of its ill and elderly).

I'm on the third day of a continuous migraine and I'm so tired of it. I had a small reprieve from ibuprofen but holy heck it came back with intensity.

I'm currently lying in bed with blackout curtains and the dog. I'm bored out of my mind and the pain from my migraine is radiating down my face. Debating messaging for steroids to break the migraine but doing that means insulin use for about a week and a half - 2 weeks.

Intermittent phone use makes it less boring but doesn't help my pain lol. I guess I just want to moan a bit.

So I am on the hunt for a travel tablet organiser, specifically one for my as needed medications. I don't exactly want to take them out of blister packs when it might be days or weeks before I need the next dose but I usually break them out into 'singlets' to take out with me. I currently just keep them tossed in my bag but they're prone to being damaged or forgotten. Does anyone have any idea for how one might keep these tidy?

This community is open to everyone, but the purpose of this community is for disabled people around the world to come together, communicate, share resources, ask questions and support eachother.

Please feel free to share links, resources, experiences, rants, memes, questions and anything you’d like to share.

Please be considerate and compassionate. Think about other people and their needs before posting.