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this post was submitted on 04 May 2024
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Mildly Interesting
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The only way I would touch these DNA tests is if I was somehow assured that it was completely anonymous and would be shredded as soon as I've seen it.
They literally turn around and sell your data, grouped along with others, to whoever wants it, and then get hacked and lose personal info. Hot mess.
They also sell it along with personally identifying inform information to your health insurance provider and the government. It's quite bullshit and should be illegal.
It’s not easy, but it can be done anonymously.
https://www.dnasquirrel.com/
You can delete your dna after submitting it and viewing your results. Most dna sites have that option. Just curious, what are you afraid someone would do with your dna results? The government in America already keeps dna results on all babies born in the 80’s and later.
You have more to risk by joining NDMP to be a bone marrow donor, but in that case you’d probably want them to use your dna to find patients you could help. I honestly think everyone should join NDMP. I don’t work for them, or have anything to gain from their organization. I just think everyone should join and help people with cancer.
Corporations aren't exactly known for being honest or fair, or following the law, when they have valuable data to sell. They might tell you that they'll delete your data but there's always a chance that they'll retain it and sell it under the table if someone makes a compelling offer. Or an employee could steal the data and sell it secretly, or they could have a security breach and someone could make off with it.
Why would any of that be bad? Because health insurance companies are salivating over new ways to deny your claims (or crank up your premiums) and genetic data that reveals an elevated risk of a serious condition is a damned good excuse for them to do just that.
But how do you know it’s actually deleted. Like, unrecoverable deleted and not just soft deleted. I can’t change my DNA when the data is eventually leaked.