this post was submitted on 06 Dec 2025
142 points (99.3% liked)

World News

51082 readers
1568 users here now

A community for discussing events around the World

Rules:

Similarly, if you see posts along these lines, do not engage. Report them, block them, and live a happier life than they do. We see too many slapfights that boil down to "Mom! He's bugging me!" and "I'm not touching you!" Going forward, slapfights will result in removed comments and temp bans to cool off.

We ask that the users report any comment or post that violate the rules, to use critical thinking when reading, posting or commenting. Users that post off-topic spam, advocate violence, have multiple comments or posts removed, weaponize reports or violate the code of conduct will be banned.

All posts and comments will be reviewed on a case-by-case basis. This means that some content that violates the rules may be allowed, while other content that does not violate the rules may be removed. The moderators retain the right to remove any content and ban users.


Lemmy World Partners

News !news@lemmy.world

Politics !politics@lemmy.world

World Politics !globalpolitics@lemmy.world


Recommendations

For Firefox users, there is media bias / propaganda / fact check plugin.

https://addons.mozilla.org/en-US/firefox/addon/media-bias-fact-check/

founded 2 years ago
MODERATORS
 

British fertility clinics raise scientific and ethical objections over patients sending embryos’ genetic data abroad for analysis

Couples undergoing IVF in the UK are exploiting an apparent legal loophole to rank their embryos based on genetic predictions of IQ, height and health, the Guardian has learned.

The controversial screening technique, which scores embryos based on their DNA, is not permitted at UK fertility clinics and critics have raised scientific and ethical objections, saying the method is unproven. But under data protection laws, patients can – and in some cases have – demanded their embryos’ raw genetic data and sent it abroad for analysis in an effort to have smarter, healthier children.

Dr Cristina Hickman, a senior embryologist and founder of Avenues fertility clinic in London, said rapid advances in embryo screening techniques and the recent launch of several US companies offering so-called polygenic screening had left clinics facing “legal and ethical confusion”.

you are viewing a single comment's thread
view the rest of the comments
[–] KoboldCoterie@pawb.social 18 points 15 hours ago (1 children)

I know 'slippery slope' is a logical fallacy, but I think it's applicable here.

We scan for disease, easy sell. But since we're doing it anyway, let's also include physical defects. Why not also include autism? I mean we have the data already, and these parents are paying for the service, why shouldn't we give them that information? And if we're doing all of that, why not also give them data on life expectancy and intelligence? Maybe physical traits - after all, they'd really prefer a blond haired, blue eyed child.

[–] Artisian@lemmy.world 13 points 14 hours ago (2 children)

I mean, we already scan for down syndrome and the like. I don't think we're locked onto this slippery slope just from that.

I agree incentives are strong to go down the slope if we make parents pay for this data. But that's a choice we make: let's include disease screening as part of baseline healthcare, but make people pay (or otherwise regulate) if they want the additional data to screen for more precise things.

The discussion of what's disease will (remain) contentious. But I don't think it has to be slippery if we are careful about the incentives. Society at large seems capable of valuing diversity.

[–] KoboldCoterie@pawb.social 10 points 14 hours ago (2 children)

but make people pay [...] if they want the additional data to screen for more precise things.

Isn't that just worse than giving the data to everyone, though? The more expensive you make it, the more of an exclusively 'rich people' service it becomes. As if kids with rich parents don't already have enough advantages in life, let's make sure they're physically peak, too?

[–] captainlezbian@lemmy.world 2 points 7 hours ago

Yeah I'm far more on board with specific information being available to everyone and nothing more. Possibly also a "high risk, low occurrence" list of things like BRACA for people who have a family history of a high consequence disease causing mutation.

And I think disabled voices need prioritized in the discussion of what genes are included. As someone with genetic health issues, I don't trust those without them to make such decisions, especially after seeing how hearing parents of deaf children behave.

[–] Artisian@lemmy.world 3 points 14 hours ago* (last edited 14 hours ago) (1 children)

I mentioned regulation in that sentence and you '...'ed it out... Clearly I'm ok with putting in guard rails, and I see no practical barriers to doing so. Feels a little bad faith to ignore the counter argument that's right there.

(Severe edit cause I confused the conversation)

[–] KoboldCoterie@pawb.social 5 points 13 hours ago* (last edited 13 hours ago) (1 children)

You said 'or otherwise regulate', not 'and regulate', so I logically assumed you were making two independent proposals and chose to respond to one of them, omitting the other for clarity.

I don't even think it's a counter-argument, really. As soon as prosperity becomes a factor, it's a "rich people only" feature, regardless of what other guardrails are in place.

[–] Artisian@lemmy.world 1 points 13 hours ago (2 children)

Most (all?) healthcare has been rich people only before it became broadly available. Usually we don't accept that as a reason to ban it though; what's so different here?

[–] Zombie@feddit.uk 2 points 12 hours ago (1 children)

Not in the UK, which this thread is about.

The NHS provides healthcare free at the point of service, for all.

Not everywhere is the United States of Fascist America.

[–] Artisian@lemmy.world 1 points 11 hours ago

I was under the impression that we still see UK folks flying across the world to skip queues, personalize medicine, and/or get treatments that haven't yet moved across the pond? Apologies for my ignorance.

[–] KoboldCoterie@pawb.social 2 points 12 hours ago (1 children)

Eugenics aren't suddenly okay if they're only accessible to some people. Healthcare on the other hand should be available to everyone but it's still a net positive even if it isn't available to everyone.

[–] Artisian@lemmy.world 1 points 11 hours ago

I guess my confusion is that some things in this thread are definitely not healthcare (blue eyes), and some definitely are (prevent sickle cell). I'd like the things that are to be available to all.

[–] Rhaedas@fedia.io 5 points 14 hours ago (1 children)

That has its own slope of discrimination from data due to being able to pay or not. If we determine a certain thing is okay ethically to screen for, anyone should be able to get it. Bad enough to have one gray area, we don't need a gradient of gray everywhere.

[–] Artisian@lemmy.world 0 points 14 hours ago

Seems fine to me; both show that the slippery slope really isn't inevitable, no?