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Seeking Advice and Personal Experiences with Tinnitus (feddit.org)

submitted 7 months ago by UngratefulLilToad@feddit.org to c/health@lemmy.world

9 comments fedilink hide all child comments

Hi everyone,

I've been dealing with tinnitus for a while now, and it's starting to take a toll on my daily life. I'm reaching out to see if anyone here has experience with tinnitus and could share some advice or personal stories on how you manage it.

A bit about my situation:

I first noticed the ringing in my ears 5 years ago.
It seems to be worse at night and in quiet environments
I've tried white noise, antidepressants, but nothing seems to provide long-term relief.

What I'm looking for:

Personal experiences: How has tinnitus affected your life, and what has helped you cope?
Management strategies: Are there any specific techniques or lifestyle changes that have made a difference for you?
Have you seen a specialist or tried any treatments that you found effective?

I appreciate any insights or advice.

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[–] bluemoon@piefed.social 1 points 1 month ago* (last edited 1 month ago)

relaxed as others mention.

i imagined auditory experiences which mimic the "sound" of the tinnitus - that went well until gucking this weekend when my right ear got worse while on karaoke. fuck karaoke. it was so easy to go into. i have immense regrets

keeping cotton balls in ears while showering to reduce ear-ecsema if you have that.

eating drinking sleeping excercising well. maybe CBT helps rewiring the brain to not be bothered, the active ingredient exists in black cummin and oregano and basil in that amount & order too.

massages, skin-to-skin relaxation.

i hear & read ear candles are a dangerous fraud.

interesting paragraph from the wikipedia article on Dorsal Cochlear Nucles where tinnitus apparently "sits"

Somatosensory inputs inhibit type IV cell activity, possibly silencing their activity during head and pinna movements.^[6]^ While this has not been studied extensively, it may play an important role in sound source localization in elevation. A similar effect is seen in the visual system in an effect known as change blindness

imo meaning somatosensory inputs debuff spatial awareness however relieve that issue. now i wonder what somatosensory inputs are.

also the devices mentioned here: one decreasing the activity in braincells related to tinnitus, another increasing sensitivity to EVERY sound to idk why. somehow level tone sensitivity. three devices in total: one around neck/jaw, one on tongue, one around wrist.

https://www.washingtonpost.com/wellness/interactive/2024/tinnitus-treatment-lenire-bimodal-neuromodulation-duo/

apparently tongue is related to change in brain. so idk wag your tongue while downplaying tinnitus sounds/imagining pleasant sounds in the same sound range. like an orchestra or reciting a speech by someperson you enjoy to hear speaking. also CBT drops while doing this. not all CBT is healthy though: depends on the soil where the plant was grown being non-toxic. check out "Florida Orange" from KokuaVida on CosmoTrade. i met the lead scientist for that, she told me to always ask for the toxins analysis of oil.