SUDC

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An unofficial Lemmy community for Sudden Unexplained Death in Childhood (SUDC).

For more information, see the SUDC Foundation website.

founded 11 months ago
MODERATORS
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Discover insights from bereaved parents navigating the profound grief of Sudden Unexplained Death in Childhood (SUDC) this Bereaved Parents Awareness Month. Hear firsthand accounts on managing grief day by day and essential self-care practices. Learn how you can support grieving parents with compassion and understanding during their darkest times.

📚 Read more about their journey and find resources for support here: https://sudc.org/finding-light-in-the-darkness-supporting-bereaved-parents/

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🌟 The SUDC Foundation Sibling Card is an essential resource for children who have lost a sibling. It helps them communicate their feelings non-verbally, making interactions easier with teachers, camp counselors, coaches, pediatricians, and doctors. This simple tool ensures understanding and support in difficult moments.

Download yours for free today at https://sudc.org/literature-brochures/

https://sudc.org/wp-content/uploads/2023/12/Sibling-Cards_12.11v2.pdf

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July is National Bereaved Parents Awareness Month—a time to recognize and support parents who have endured the heartbreaking loss of a child. This month holds profound importance as it brings attention to their unique grief journey and the need for compassion and understanding.

The SUDC Foundation is dedicated to supporting families affected by Sudden Unexplained Death in Childhood (SUDC). Through raising awareness, providing vital resources, and funding critical research, we strive to bring hope and healing to bereaved parents.

💙 Join us this July in honoring these families. Let’s raise our voices, share their stories, and ensure they never feel alone.

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This Father's Day, we acknowledge the unique journey of all fathers who have lost a child. Take time to cherish the memories and know that you are not alone. We stand with you, offering support and solidarity. 💛

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Word of the Day: Vilomah

Did you know? The term "Vilomah" means "against a natural order" and is used to describe a parent who has lost a child. It highlights the profound grief and unnatural pain of outliving one's own child.

Let's spread awareness and support all grieving parents. 💔

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Supporting someone is not about fixing them, it's about loving them through their journey of healing and growth.

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Losing a child is everyone’s worst nightmare. It’s not the way things are supposed to happen; so how do you support someone you love through something you’re uncomfortable even thinking about?

Here are 5 tips for supporting a grieving parent:

  • Accept their unique experience. Everyone's grief journey is different, so acknowledging their individual process is crucial.
  • Avoid blame and guilt. Healing doesn't come from dwelling on what could have been done differently.
  • Embrace their way of finding meaning. Let them navigate their own path to making sense of the loss, whether through religion, memorials, or awareness efforts.
  • Keep their child's memory alive. Share stories, photos, and memories to honor their child's legacy, even beyond the first year.
  • Be realistic with support. Understand there's no "getting over" child loss; it's about being there for them and helping them accept their reality.
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Grief is a natural response to loss, flooding the brain with stress hormones and reshaping thoughts and feelings. It's okay to feel foggy or emotional; it's part of the brain's adaptation process.

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In the aftermath of traumatic loss, finding stability amidst the turmoil of emotions is crucial for healing. Simple routines like waking up at the same time each day or having a nutritious breakfast; taking a short walk may seem mundane, but its impact is profound.

Research has shown that routine offers more than just a sense of normalcy—it provides structure, predictability, and control in a time when everything feels chaotic and uncertain. From a neurobiological perspective, adhering to routine helps regulate emotions and reduce stress. Engaging in familiar activities at specific times stabilizes neural pathways associated with emotional regulation, offering a sense of order amidst the chaos of grief.

Physically, routine plays a vital role in promoting overall well-being, especially for those who have experienced a traumatic loss. For example, engaging in regular exercise, even a short walk, can release endorphins, the body’s natural painkillers and mood elevators. This simple yet impactful activity can offer a brief respite from the overwhelming emotions associated with grief and provide a much-needed boost in mood. Establishing a consistent sleep schedule becomes crucial in managing the physical toll of grief. By prioritizing a regular bedtime and wake-up time, individuals can improve sleep quality, enhance mood, and bolster cognitive function.

But how do we incorporate routine into our lives amidst the chaos of loss? This is where SMART goals come into play. SMART goals provide a structured framework for setting and achieving objectives, making them particularly useful for building and maintaining routines and self-care plans.

Let’s say your goal is to incorporate mindfulness meditation into your daily routine to help manage stress and improve emotional well-being. Using the SMART framework, you could set a goal like this:

  • Specific: I will practice mindfulness meditation for 10 minutes each morning before starting my day.
  • Measurable: I will track my progress by recording the number of days per week I complete my meditation practice.
  • Achievable: I will start with a 5-minute meditation and gradually increase to 10 minutes as I become more comfortable.
  • Relevant: Mindfulness meditation aligns with my goal of reducing stress and improving emotional well-being.
  • Time-Bound-: I will commit to practicing mindfulness meditation every morning for the next 30 days.

Incorporating SMART goals into your routine allows you to track your progress, stay motivated, and maintain momentum towards your objectives. Over time, you’ll find that these small, consistent actions add up to significant improvements in your overall well-being.

In addition to routine and SMART goals, another tool that can help individuals set routines in their lives after trauma and loss is the concept of habit stacking. Habit stacking involves linking new habits to existing ones, making it easier to incorporate them into your daily routine. For example, if you already have a habit of brushing your teeth before bed, you could stack a new habit like journaling or reading a book onto this existing routine. Other examples of habit stacking include doing a short meditation after your morning coffee, or practicing gratitude while you prepare dinner.

By combining routine, SMART goals, and habit stacking, individuals can create a supportive framework for healing and recovery in the aftermath of traumatic loss. Through small, consistent actions and intentional efforts, individuals can find solace amidst grief and gradually rebuild their lives with resilience and strength.

As you embark on this journey of rebuilding, remember to give yourself permission to start small and to slowly build routines over time. Healing is not a linear process, and it’s okay to take things one step at a time. Be gentle with yourself and give yourself grace as you relearn to live life in the aftermath of loss. Each small step forward is a victory, and with time and patience, you will find your way towards healing and wholeness once again.

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Do you know a passionate young individual aged 12 and above?

We're on the lookout for Junior Ambassadors to join our volunteer team and help raise awareness for our cause.

If you or someone you know is interested in earning volunteer hours and making a difference, reach out to Ghazala@sudc.org today and be a part of something truly impactful!

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Embrace the transformative power of self-care! 🌟 Imagine the boundless energy, creativity, and love you can share with the world when you prioritize your own well-being.

This Lift You Up Tuesday, let's ignite a ripple effect of positivity by reminding ourselves and others to cherish our own health and happiness.

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Today, we honor all mothers, but we also recognize that Mother's Day isn't always filled with joy. For those who have experienced the unimaginable loss of a child, today may be bittersweet, filled with sorrow. We want to let you know that you are not alone.

💛 Our hearts are with you, and we honor the love and strength you continue to carry

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Remember, not all who experience trauma develop Post Traumatic Stress Disorder (PTSD). While acute stress is immediate and may include flashbacks or anxiety, PTSD can persist for years.

Recovery is possible with support. Explore our trauma-informed services at no cost: https://sudc.org/grief-resources/

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[...]

Hart kept posting videos, until one day, his class caught the eye of a woman all the way in Montana.

“One day I was just scrolling through Facebook and I came across a video that he had recorded with his first graders” Kristal Leonard said. “I just kept watching it over and over again.”

Leonard couldn’t help but think of her son Ryan when she watched each video. He passed away in 2020. Ryan was just 18-months-old.

“[He] would be going into kindergarten this year,” said Leonard. “We’re a very musical family, so I always pictured one day he would be singing and stuff.”

“Kristal let me know that unfortunately the night that he passed, she sang ‘Sweet Child O’ Mine’ to him.”

With that in mind, Mr. Hart’s class sang the Guns N’ Roses classic in a video dedicated to Kristal and Ryan.

“I just couldn’t believe that these kids that I had been watching for like a month were now singing my favorite song that I had sang to my son,” Leonard said. “I just sobbed for a good 15 minutes.”

What started as Hart sharing his passion for music with his kids, led to more than 3 million views and connections with people like Kristal all across the country.

“Certainly nothing I could ever anticipate, but if it’s a biproduct of me sitting here with these kids and recording it,” said Hart. “What can be greater than that?”

Ryan passed away from a sudden and unexplained death.

Kristal says her family leaned on the Sudden Unexplained Death in Childhood Foundation (SUDC) after Ryan passed. Their mission is to promote awareness and advocate for research for children affected by sudden unexplained deaths. You can learn more about them by clicking HERE.

You can view more of Matt Hart’s TikToks by clicking HERE.

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Did you know?

Sudden Unexplained Death in Childhood occurs in Black/African American children at a rate more than 2.2 times that of white children. This staggering statistic sheds light on the urgent need to address disparities in healthcare and mental wellness among minority communities.

During this important week and month, let's come together to advocate for better access to maternal healthcare and mental health resources for Black and minority families. By raising awareness and fostering support, we can strive towards equitable care and better outcomes for all.

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National Siblings Day (midwest.social)
submitted 10 months ago* (last edited 10 months ago) by sudc@midwest.social to c/sudc@midwest.social
 
 

On #NationalSiblingsDay, we honor the cherished memories of those who left us too soon, especially siblings who are deeply missed. Today and every day, we send peace, love, and strength to all who carry the weight of grief for a lost brother or sister.

The SUDC Foundation recognizes the unique challenges of sibling loss, especially losing a sibling suddenly from unexplained causes. To those navigating this path, know that you are not alone. If you or someone you know is mourning the loss of a sibling, please visit the link in our bio for a list of supportive resources.

We stand with you, offering compassionate support and understanding, today and always.

https://sudc.org/for-siblings/

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“At the blueness of the skies and in the warmth of the summer, we remember them.” Uplifting words to start off your week. Have you considered hosting a fundraising event in memory of a beloved SUDC child?

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The SUDC Foundation would like to express our deepest gratitude to all the incredible volunteers who generously give their time, skills, and energy to support the SUDC Foundation and our mission.

Whether you are raising awareness, providing comfort to a grieving family, or hosting a fundraiser; your contributions, no matter how big or small, make a profound impact on the lives of those affected by Sudden Unexplained Death in Childhood (SUDC).

Thank you for being the heart and soul of our community. Your kindness, generosity, and compassionate support inspire us every day.

If you are interested in joining our incredible team of volunteers, please reach out to us at: info@sudc.org.

Together, let's continue to #ShineAlightOnSUDC and provide hope and comfort to those affected by SUDC.

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Join Team SUDC for the 2024 TCS NYC Marathon! It's time to lace up our sneakers again, after an entire month of striding for #SUDCAwareness.

We're excited to announce that the SUDC Foundation has once again been selected as a charity partner for the TCS New York City Marathon!

We are grateful for the opportunity to continue raising awareness and accelerate our commitment to innovation & partnerships in SUDC Research. If you're interested in representing the SUDC Foundation in the 2024 NYC Marathon this November, please contact us at development@sudc.org.

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There are some who bring a light so great into the world that even after they have gone, the light remains

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